Hayley McGurk was diagnosed with epilepsy when she was just nine years old after having her first seizure in primary school. Unfortunately, when Hayley was 20 years old her seizures got worse and sadly, she passed away due to Sudden Unexpected Death in Epilepsy (SUDEP) in 2015.
Uschi Stickroth, Helpline & Information Officer, at Epilepsy Scotland provides information on what to expect from our new teachers guide and how it can help teachers look after children living with epilepsy.
We are looking to encourage people to start talking about epilepsy and share their experiences. Each month, we will be sharing these on our website and on social media. This month, Shona shares her experiences of being diagnosed at a young age and how epilepsy has affected her.
For the past few months we have been campaigning about social security – specifically Personal Independence Payment (PIP).
Our Chief Executive, Lesslie Young talks about our Epilepsy Friendly Award.
Bruce Shiell, Wellbeing Worker at Epilepsy Scotland looks at how you can come to terms with a diagnosis of epilepsy.
The Epilepsy Nurses Association (ESNA) has launched new best practice training guidelines for the administration of Buccal Midazolam for epilepsy patients.
Stuart Macgee, Helpline & Information Officer at Epilepsy Scotland provides a few things people living with epilepsy should consider when travelling abroad.
Our Chief Executive, Lesslie Young explains the exciting launch of our new Ayrshire Information Service.
Last week, we discussed the problem of mental health in children who have epilepsy. We noted the significantly higher rates of mental health problems in children with epilepsy and how it is currently under diagnosed and not recognised. NHS Lothian has developed and piloted an effective screening method.
In December 2018, the Scottish Budget was announced. This decided Scottish Government spending for 2019/2020. We noticed that in the budget mental health received a significant amount of attention – something which we fully support.
Our Chief Executive, Lesslie Young shares some of the exciting advances, achievements and developments within Epilepsy Scotland so far this year.
One of our fundraisers, Ben Smith explains why he started fundraising for Epilepsy Scotland.
Uschi Stickroth, Helpline & Information Officer at Epilepsy Scotland explains how our revised Staying safe with epilepsy guide can help identify and minimise possible risks.
Kimberley Burns has been volunteering with Epilepsy Scotland for the past couple of months and has been involved in helping out with collections and events. This week is National Volunteers Week and below Kimberley explains why she got involved with Epilepsy Scotland and why others should think about volunteering as well.
The Scottish Government have developed the first Neurological Action Plan. This is a significant step forward in improving how people with neurological conditions are cared for. Also, after consulting people with neurological conditions, clinicians and third sector organisations, the Government came up with five aims and seventeen commitments.
Our #TalkEpilepsy campaign aims to encourage people living with epilepsy to share their experiences. University student, Milo Trainor Moss shares his experiences of studying abroad with epilepsy and having seizures while travelling overseas.
Robyn Friel, Head of Fundraising and Communications at Epilepsy Scotland explains why we created the #TalkEpilepsy campaign.
As part of our #TalkEpilepsy campaign we are encouraging people living with epilepsy to share their experiences to help fight the stigma and show that epilepsy is more than just seizures. Long-time supporter of Epilepsy Scotland, Tom Davies shares his experiences of being diagnosed with epilepsy when he was 15 years old.
We are launching a national campaign during National Epilepsy Week, which aims to highlight the dangers of having a seizure and encourage the general public to learn basic first aid tips to help people with epilepsy.
Our Chief Executive, Lesslie Young is doing a skydive to raise money for Epilepsy Scotland. Here Lesslie explains why.
Epilepsy Scotland’s first ever podcast focuses on the most frequently asked questions that come through our Helpline & Information service regarding the benefits system for people living with epilepsy. One of our Welfare Rights Officers, Tracey Millar answers questions regarding Personal Independence Payment and Employment Support Allowance and much more.
Read our interview with comedian Maisie Adam about growing up with epilepsy.
Read our chief executive Lesslie Young’s latest blog:
Christmas is nearly here, and we are launching our Christmas card competition! We have two categories; under 12s and 12 and over.
Epilepsy Scotland, along with several other charities, met with the Scottish Government’s Head of Medicine Policy and Principal Pharmaceutical Officer to go over plans to ensure the supply of medications in the event of a no deal Brexit.
