#TalkEpilepsy – Scott’s story

Scott was diagnosed with epilepsy when he was very young. He shares his experiences of living with the neurological condition.

I was told by my family members, that when I was older, I had epilepsy and also had meningitis which was a very scary thing to understand.

What happened was every time a seizure came on, I felt a loss of consciousness. I felt confused and scared of that type of stuff. Not sure what was happening to me.

I remember having seizures and was told I had lots of them. Pretty much there were seizures where it was life or death.

A few others, I was knocked out and recovered. I was unsure where I was and what had happened.

But after a serious amount of effort from family, doctors, specialist staff, and others, I had an option to turn my life around.

When I was 11 or 12, I was offered an operation from the Neurosurgeons at Southern General Hospital in Glasgow.

The surgery was a success and the surgeons were excellent. I’ve managed to do more things that I couldn’t do pre-surgery.

I have faced challenges such as with my mental health and the feeling of not being able to fulfil my life. But I’ve managed to get support for this as I got older.

If you would like to share your experiences of living with epilepsy, please email David Coates our Communications Officer at or call 0141 427 4911.