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Latest news

Saltcoats: Come alang an hiv a blether!

Saltcoats: Come alang an hiv a blether!

Our final 'tour stop' takes us to Saltcoats in sunny Ayrshire.  We will be setting up our information stall on 11 October 2012 at the Sainsbury's Superstore in Hamilton Street between 11am to 3pm.  If you can, please download our poster and help us spread the word as widely as possible.

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Changes to Epanutin (phenytoin) capsules

Changes to Epanutin (phenytoin) capsules

From 24th September phenytoin (current brand name Epanutin) is being transferred from one pharmaceutical company (Pfizer) to another (Flynn Pharma ltd).

The changes relate to Epanutin capsules only. They do not apply to Epanutin infatabs or oral suspension – these will not change.

In the past Epanutin (phenytoin/phenytoin sodium) capsules were distributed by Pfizer. Flynn Pharma Ltd now holds the license for phenytoin ca Read More »

Epilepsy12 report launched

Epilepsy12 report launched

A UK-wide audit shows variation in care for children with epilepsy.

The first UK-wide audit of paediatric epilepsy services, led by the Royal College of Paediatrics and Child Health  with contributing patient organisations including Epilepsy Scotland, reveals variation in care for children and adolescents with epilepsy.  

Funded by Healthcare Quality Improvement Partnership (HQIP) and Healthcare Improvement Scotland (HIS), this report exami Read More »

New epilepsy drug launched

New epilepsy drug launched

Eisai have just launched their new epilepsy drug Perampanel, also known as Fycompa.  Clinical trials have shown that it can be effective in the treatment of partial onset seizures, in particular with secondary generalisations.

Perampanel works differently to any other licenced epilepsy drugs.  The drug targets AMPA receptors in the brain which play an important part in how seizures start and spread across the brain.  For more information on th Read More »

Perth Epilepsy Information Event

Perth Epilepsy Information Event

If you live in Perth, don't miss our information event on 28 September.   We will be setting up stall at the Perth Library for the Disabled between 11am and 3pm.   Our friendly contact officers will be on hand to provide information on epilepsy to anyone affected by it.

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Information events in Aberdeen and Peterhead

Information events in Aberdeen and Peterhead

We are continuing our mini 'tour of Scotland' with a stop in Aberdeen on 13 September, with an information stall at the Union Square Shopping Centre between 2pm and 6.30pm. This is followed by a stop in Peterhead on 14 September at the Peterhead library between 10am and 2pm.  Come along to pick up information on epilepsy or for a chat with one of Read More »

Supporters Share Employment Stories

Supporters Share Employment Stories

Some of our supporters share how their employers have helped them at work.  Take a look at this short film on employability by LTCAS (Long-Term Conditions Alliance Scotland).

 

 

People with epilepsy can sometimes face difficulties when looking for work or staying in employment. In recognition of this, a Read More »

Next stop: Musselburgh

Next stop: Musselburgh

Our mini 'Tour of Scotland' continues with our next Information Event at Musselburgh.     If you are in the area on 7 August, come and meet us at the Musselburgh Library between 11am and 3pm. Our contact team will be there to chat to you and answer your questions about epilepsy.

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Hot off the press - our new Epilepsy guide

Hot off the press - our new Epilepsy guide

For quick and accessible information about epilepsy, check out our new 'Epilepsy explained ' guide.  This practical step by step guide is for anyone newly diagnosed or those who simply want to learn more about epilepsy.  It covers many frequently asked questions on seizure triggers, first aid, treatment, driving, safety, memory and much more.   The guide can be downloaded Read More »

50-50 Chance of Decent Epilepsy Care

50-50 Chance of Decent Epilepsy Care

With half of Scotland’s health boards failing to meet national standards, people with seizures have a 50-50 chance of seeing a GP or practice nurse trained in epilepsy.
NHS Health Improvement Scotland’s latest report reveals the geographical winners and losers where one in two boards has not been commended for good practice. 
 

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Kilmarnock Information Event

Kilmarnock Information Event

Come and meet us at our Information Event in Kilmarnock on 12 July. You can find us at the Burns Shopping Mall, Burns Precinct, Kilmarnock between 11am and 3pm.  This is a free event open to anyone.  Pop along for a chat with our Contact Team or pick up free information.

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Epilepsy is much more than seizures

Epilepsy is much more than seizures

Watch our powerful new video highlighting just some of the physical consequences, social challenges and profound emotional experiences of people affected by epilepsy. Some of the people we work with speak candidly about the wider effects that epilepsy has had on their life:

 

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Breaking news: relaxation of driving regulations

Breaking news: relaxation of driving regulations

The DVLA have just announced they will relax some of the current driving regulations for people with epilepsy.  These changes will come into effect later this year and are expected to benefit many people with epilepsy:

 

  • For the first time, anyone who has only ever had seizures while asleep may now be considered for a licence after one year Read More »