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0808 800 2200

Latest news

Media Award

Media Award

Take part in our Media Award 2013 and you could win 2 prizes worth £300 each.   More details on how to make your submission here.

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A Christmas message from us

A Christmas message from us

We want to take this opportunity to wish all our supporters a merry Christmas.  2012 has been a tough year and we couldn’t have done it without your generous donations and fundraising efforts.  We have also been overwhelmed by the loyalty and support you have shown us on facebook and twitter helping to spread awareness of epilepsy as well as the work we do.  This has given us the energy and drive to continue delivering a great service to the 54,000 peo Read More »

New epilepsy drug approved in Scotland

New epilepsy drug approved in Scotland

The Scottish Medicines Consortium (SMC) has today released its advice on the use of a new anti-epileptic drug in Scotland.  Fycompa® (perampanel) manufactured by the drugs company Esai was given its licence earlier this year.  It has now been approved by the SMC as an adjunctive treatment for partial-onset seizures (with or without secondarily generalised seizures) in patients with epilepsy aged 12 years and older in Scotland.  

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Helpline Survey

Helpline Survey

We want to know what you think of us so we have created a new Helpline Survey.  If you have used this service in the past, please take a few minutes to give us some feedback. We are constantly reviewing our service to you and your feedback will help us to do this. Thank you.

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Michael Adair named Worker of the Year!

Michael Adair named Worker of the Year!

We are very proud to announce that our resident epilepsy social worker, Michael Adair, has been named Worker of the Year at the Herald's 5th annual Society Awards in Glasgow.  Michael was recognised for all the work he does with the families of young people with epilepsy.  He beat off very strong competition at the event last week, which was presented in association with the Big Lottery Fund in Scotland.

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Braehead event 5 November

Braehead event 5 November

We've been given a great opportunity to have an epilepsy awareness stall at Braehead Shopping Centre Glasgow on 5 November.   Find us on Monday at the Lower Leisure Mall between Costa Coffee and Aulds where we'll be handing out 'bags of information' to shoppers raising awareness of epilepsy as much as we can.  Our staff will be there from 8.30am until 9pm so plenty of time to get your Christmas shopping in and to pop by and say hello!

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Epanutin Infatabs 50mg

Epanutin Infatabs 50mg

If your child is on Epanutin Infatabs 50mg chewable you should be given the following letter by your pharmacist emphasising that the tablets must be chewed not swallowed whole:

 

09 October 2012

Dear Patient,
Re: A reminder on how to take Epanutin Infatabs 50mg Chewable Tablets (phenytoin)
The current instructions on the Patient Information Leaflet provided with your medicine states ‘Chew the Infatabs or swallow them Read More »

Neighbours' epilepsy storyline

Neighbours' epilepsy storyline

If you have been affected by the recent epilepsy storyline in Neighbours showing on Channel 5, you can contact us on our confidential freephone helpline 0808 800 2200.  Whether you are looking for information on epilepsy or simply want to talk to someone, our trained helpline staff are here to listen and help.

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It's time...

It's time...

Our charity Christmas Cards are selling fast.  But don't worry, there's still time and if you order now, you will still be guaranteed a good selection.  Buying your cards from us will help continue our services for the 54,000 children and adults affected by epilepsy in Scotland.  You can make your order online, by email Read More »

Saltcoats: Come alang an hiv a blether!

Saltcoats: Come alang an hiv a blether!

Our final 'tour stop' takes us to Saltcoats in sunny Ayrshire.  We will be setting up our information stall on 11 October 2012 at the Sainsbury's Superstore in Hamilton Street between 11am to 3pm.  If you can, please download our poster and help us spread the word as widely as possible.

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Changes to Epanutin (phenytoin) capsules

Changes to Epanutin (phenytoin) capsules

From 24th September phenytoin (current brand name Epanutin) is being transferred from one pharmaceutical company (Pfizer) to another (Flynn Pharma ltd).

The changes relate to Epanutin capsules only. They do not apply to Epanutin infatabs or oral suspension – these will not change.

In the past Epanutin (phenytoin/phenytoin sodium) capsules were distributed by Pfizer. Flynn Pharma Ltd now holds the license for phenytoin ca Read More »

Epilepsy12 report launched

Epilepsy12 report launched

A UK-wide audit shows variation in care for children with epilepsy.

The first UK-wide audit of paediatric epilepsy services, led by the Royal College of Paediatrics and Child Health  with contributing patient organisations including Epilepsy Scotland, reveals variation in care for children and adolescents with epilepsy.  

Funded by Healthcare Quality Improvement Partnership (HQIP) and Healthcare Improvement Scotland (HIS), this report exami Read More »

New epilepsy drug launched

New epilepsy drug launched

Eisai have just launched their new epilepsy drug Perampanel, also known as Fycompa.  Clinical trials have shown that it can be effective in the treatment of partial onset seizures, in particular with secondary generalisations.

Perampanel works differently to any other licenced epilepsy drugs.  The drug targets AMPA receptors in the brain which play an important part in how seizures start and spread across the brain.  For more information on th Read More »