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Latest news

Edinburgh Fun Day

Edinburgh Fun Day

Come and meet us in Edinburgh next Saturday, 26 October. We are having our AGM in the morning but anyone can come along from 13.15pm onwards (until 15.15pm) to meet some of our staff, have a chat, find out more about epilepsy and our services, and to buy your Christmas cards and other gifts from us. We will also have a number of workshops to entertain the whole family, including face painting and music works Read More »

NEW: information for parents

NEW: information for parents

Does your child have epilepsy?  Check out our new information resource 'Everything you need to know about epilepsy - for parents', which may be particularly useful for anyone new to epilepsy.

The resource packs consists of 25 individual factsheets, all of which can be downloaded free of charge here .  If you have difficulty with downloading/printing, please let us know. Read More »

Training reaches new heights

Training reaches new heights

In our fight to combat ignorance, stigma and discrimination, we have provided epilepsy training to over 10,000 people in Scotland to date.   Our training is delivered by highly experienced professionals and aims to raise awareness of this neuro Read More »

Travel insurance made easy!

Travel insurance made easy!

Epilepsy Scotland is excited to announce a great deal on travel insurance for people with epilepsy.  We have teamed up with Medical Travel Compared - a travel insurance comparison site with a difference.  Medical Travel Compared specialise in comparing insurance companies who offer policies to people with health conditions such as epilepsy.  For every travel insurance pol Read More »

Phenytoin sodium hard capsules

Phenytoin sodium hard capsules

A new version of phenytoin sodium hard capsules are now available from the pharmaceutical company NRIM Limited.  The capsules are available as 100mg capsules only.  Prior to this the sole producer for the UK was Flynn Pharma Limited.

The SIGN (Scottish Intercollegiate Guidelines Network) guidelines recommend getting the same make or brand of anti-epileptic drug (AED) all the time.  So like all other anti-epileptic drugs, you may wish to ensure Read More »

Reports of disability hate crime in Scotland on the up

Reports of disability hate crime in Scotland on the up

New figures show that the number of disability hate crimes reported to Scottish police in 2012-2013 has more than doubled on the previous year.  There were 138 charges reported in 2012-13 compared with 60 charges in 2011-12, according to a report published by the Crown Office & Procurator Fiscal Service. 

Disability hate crimes are crimes which have been motivated by malice or ill-will towards a person because of a real, or perceived, disabili Read More »

Essential summer reading

Essential summer reading

Hot off the press, our summer issue of Spotlight on Epilepsy.  Features include 'Before and After Brain Surgery - two families share their experiences', 'A specialist view', by consultant neurologist Rod Duncan, feedback from National Epilepsy Week's Many Faces Campaign, latest on epilepsy research, plus news on fundraising and other events.  Download your copy Read More »

Worries over Trobalt (retigabine) side effects

Worries over Trobalt (retigabine) side effects

According to recent reports, the anti-epileptic drug (AED) Trobalt (retigabine) has been causing some worrying side-effects.  It was found that after several years taking the drug, it can cause a blue discolouration in the skin - particularly the lips, fingernails and whites of the eyes.  The problem first came to light in the USA where the drug is known as Potiga (ezogabine) and the Food and Drug Adminstration (FDA) has issued a drug safety alert.  

Read More »

Have a break ...

Have a break ...

Epilepsy Scotland is delighted to announce the purchase of a luxury caravan based at Seton Sands in the Lothians.  This has been made possible thanks to the generous grant from Spifox.  A further donation from Ikea went towards purchase of soft furnishings, and we also received support from players of  The People's Postcode Lottery.  The caravan is now available to b Read More »

A day in the life of Sian

A day in the life of Sian

Listen to Sian's touching YouTube film about what life is like living with epilepsy.  The film is 6 minutes long and we think it is well worth watching.

 

 

 

Visit Streaming Well for more epi Read More »

Lighthouse Activity Group Glasgow is looking for new members

Lighthouse Activity Group Glasgow is looking for new members

Our Glasgow activity group meet on a Tuesday and Thursday and have an exciting programme of activities this summer. This includes a trip to Hampden Park, playing bowls in Kelvingrove Park and a BBQ (let’s hope it’s sunny!).  The group is open to anyone who is aged 16 or over who requires support because they have a disability including:

  • A physical disability, including acquired brain injury
  • Mental health needs
  • Read More »

New guidance to help trade union representatives

New guidance to help trade union representatives

New guidance launched in National Epilepsy Week will help trade union representatives understand epilepsy better.  Compiled by Epilepsy Scotland and the STUC, the guidance explains how stewards can support members in the workplace who have this common serious neurological condition. For a copy of the guidance  please contact Ian Tasker on 07974 966227.

Epilepsy Scotland’s chief executive Lesslie Young remarked: “We are grateful to the S Read More »

Temporal lobe epilepsy linked to depression in children

Temporal lobe epilepsy linked to depression in children

A new study has shown that children with temporal lobe epilepsy are more prone to psychiatric illness, particularly depression and behavioural problems.

  
The study assessed 40 children, aged from 6 to 17, whose epilepsy didn’t respond to anti- epileptic medication.  It compared children who had seizures in the temporal lobe to those whose seizures were elsewhere in the brain.  The study found that almost 80% of children with temp Read More »