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Have you ever experienced any side effects, including any breakthrough seizures, when switching between different brands/versions of your usual anti-epileptic drug (AED)? If yes, the MHRA (Medicines and Healthcare Regulatory Authority) want to hear from you via their Yellow Card scheme.
If you have a suspicion that a side effect or seizure occurred because you were given a different brand or generic version Read More »
A new study published in the journal Epilepsia has found that higher doses of perampanel (Fycompa) can reduce the effectiveness of the oral contraceptive pill. This could increase the chance of an unplanned pregnancy. If you are taking both perampanel and a hormonal contraceptive, you should speak to your GP, regardless of the dose. There are a number of other anti-epileptic drugs that can also reduce th Read More »
Our new awareness campaign is kicking off today with the launch of our new training DVD for Crown Office staff and Police Scotland officers. The awareness raising tool shows what seizure-related behaviour looks like and features real life scenarios such as 'suspects having uncontrolled complex seizures appearing to be 'drunk and disorderly' and appearing to resist arrest. For more information about the DVD and our launch tonight, please chec Read More »
As of 20 October 2014 retailers in Scotland will have to charge 5p for every plastic carrier bag. Most retailers have kindly agreed to donate this money to charity. If you are a retailer, would you consider us as your chosen charity? Or do you know any shops who may be willing to donate this bag charge to us? If you have any ideas or suggestions, please email firstname.lastname@example.org or call 0141 427 4911.
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Get creative, come up with a logo for the new International Epilepsy Day. This is a competition run by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) with a prize money for the winning entry of $250. Closing date is 31 October 2014.
Please note 2 drug alerts have recently been issued for Buccal Midazolam by the Medicines and Healthcare Products Regulatory Agency (MHRA). These affect the following:
Midazolam Buccal Liquid 10mg/1ml, 5ml, manufactured by Penn Pharma, distributed in Quantum Pharma livery. The reason for this recall is that the screw caps on some of the units have not been correctly placed during manufacture. This may result in evapo Read More »
As part of its ‘Your Say’ initiative, the Welfare Reform Committee of the Scottish Parliament has asked Epilepsy Scotland to share the experiences of people with epilepsy around Personal Independence Payments (PIP).
PIP has replaced Disability Living Allowance (DLA) for people aged 16 to 64 who have care needs, and/or mobility needs.
The idea is that the Committee gathers experiences and views from people with experience of applyi Read More »
This year's theme for National Epilepsy Week 2014 (18-24 May 2014) is ‘Transforming lives’. If you have epilepsy, or are a carer and/or family member of someone with epilepsy, we want to hear from you. What do you think we should be doing to change lives for the better in the coming year?
In particular, what key issue do you want us to pursue in the next 12 months that would transform the lives of people with epilepsy?&nbs Read More »
The International League Against Epilepsy (ILAE) has published a new definition of epilepsy. The purpose of this is to give practical help to doctors in making a clinical diagnosis and potentially starting treatment. It also recognises that some people may ‘outgrow’ their epilepsy.
The ILAE considers that epilepsy is defined by any of the following:
1. At least two unprovoked (or r Read More »
Join our Thunderclap campaign to add your voice to our Purple Day message “Think drink Think drugs Think seizure! People who look drunk or on drugs may be having a seizure #epilepsy #purpleday"
The Medicines and Healthcare products Regulatory Agency (MHRA) say that phenytoin sodium hard capsules should not be interchanged. This is because slight changes in the way the drug is manufactured can affect seizure control. Flynn Pharma Ltd have been the only drug company supplying these capsules to the UK market. A new generic version of phenytoin sodium hard capsules, produced by NRIM Limited, is now being stocked by some of the major high street chai Read More »
We are very pleased to announce that Epilepsy Scotland has joined the growing list of organisations providing a Third Party Reporting service to their local community. Any individual wishing to report a hate crime but is reluctant to go to the police direct can now phone our helpline 0808 800 2200 or drop into our Glasgow office and ask for help with reporting a hate cri Read More »
There has been much in the international press and on television recently about the apparent profound improvement of seizure management of some people with refractory epilepsy as a result of medical marihuana (cannabinoids).
Epilepsy Scotland acknowledges the ongoing distress, challenges, difficulties and unending uncertainty that exist when living with someone who has numerous seizures a day combined with the constant risk of significant injury Read More »