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Please help us gather information about living with epilepsy to inform the approval of a new epilepsy drug in Scotland!
Epilepsy Scotland is gathering anonymous information from people with epilepsy, their families and carers to help inform the Scottish Medicines Consortium (SMC) when they assess a new epilepsy drug, 'Briviact' (Brivaracetam).
The SMC is the body which decides whether new medicines should be made av Read More »
Only a few months into his new role, Tom Davies, has already been busy raising awareness for epilepsy. In the run-up to international Purple Day, Tom and our corporate fundraiser Scott Barclay were interviewed on STV Glasgow’s Live at Five show. That same weekend, Tom stood and shared his experiences of epilepsy for the first time with an audience of over 120 guests attending our inaugural gala cabaret evening fundraiser at the Village Hotel in Glasgow. & Read More »
Over 1,200 people with epilepsy in Dumfries and Galloway are now getting help from a local Epilepsy Specialist Nurse (ESN) instead of travelling miles to other health boards, thanks to a successful new funding model of healthcare devised by Epilepsy Scotland. This unique three year collaboration with the NHS and pharmaceutical companies UCB Pharma and GSK means epilepsy patients also benefit from better equipped GPs, practice and learni Read More »
Please join our Thunderclap campaign to add your voice to our Purple Day message: “Epilepsy is more than just seizures. Help raise awareness to ‘see past the seizure’. #purpleday #epilepsy”
Hot off the press: new dates for our next round of free epilepsy training as part of our Bridging the Gap project. We will be visiting Pitlochry, Fort William and Inverness in November, so get these dates in your diaries. All participants will get a certificate for 3 CPD points. Please BOOK IN ADVANCE by emailing firstname.lastname@example.org or call Ian on 0141 427 491.
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There is some good news if you are concerned about SUDEP (Sudden Unexplained Death in Epilepsy). In collaboration with NHS, clinicians and other professionals, SUDEP Action have just launched the first ever self-monitoring app that allows a person with epilepsy to self-monitor known risk factors.
Every year, epilepsy organisations around the country double their efforts to spread the word about epilepsy and raise awareness. Unlike other years, this year has no set theme, so the focus is on you. Are you planning an event? We'd love to hear from you. Don't forget to send in your photos to email@example.com or share them on our facebook or twitter pages. Read More »
Epilepsy Scotland congratulated for SUDEP research.
Epilepsy Scotland has collaborated with the Scottish Government to bring to light the thoughts of young people with epilepsy on SUDEP (Sudden and Unexpected Death in Epilepsy). It has emerged that mRead More »
Unanimous backing for new WHO resolution on tackling epilepsy
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EVENT CANCELLATION - we regret to inform that this event had to be postponed. We will publish the new date and further details in due course.
Epilepsy Scotland is pleased to announce an exciting new information event taking place at the AK Bell Library in Perth on Saturday, 2 May 2015. This is a free and informal event and is aimed at anyone whose seizures are not controlled by medication. There will be speakers introducing other possibl Read More »
Have you ever experienced any side effects, including any breakthrough seizures, when switching between different brands/versions of your usual anti-epileptic drug (AED)? If yes, the MHRA (Medicines and Healthcare Regulatory Authority) want to hear from you via their Yellow Card scheme.
If you have a suspicion that a side effect or seizure occurred because you were given a different brand or generic version Read More »
A new study published in the journal Epilepsia has found that higher doses of perampanel (Fycompa) can reduce the effectiveness of the oral contraceptive pill. This could increase the chance of an unplanned pregnancy. If you are taking both perampanel and a hormonal contraceptive, you should speak to your GP, regardless of the dose. There are a number of other anti-epileptic drugs that can also reduce th Read More »
Our new awareness campaign is kicking off today with the launch of our new training DVD for Crown Office staff and Police Scotland officers. The awareness raising tool shows what seizure-related behaviour looks like and features real life scenarios such as 'suspects having uncontrolled complex seizures appearing to be 'drunk and disorderly' and appearing to resist arrest. For more information about the DVD and our launch tonight, please chec Read More »