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Latest news

WHO Resolution on Epilepsy

WHO Resolution on Epilepsy

Unanimous backing for new WHO resolution on tackling epilepsy

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Epilepsy - choices beyond drugs, Perth, 2 May

Epilepsy - choices beyond drugs, Perth, 2 May

EVENT CANCELLATION - we regret to inform that this event had to be postponed.  We will publish the new date and further details in due course.

Epilepsy Scotland is pleased to announce an exciting new information event taking place at the AK Bell Library in Perth on Saturday, 2 May 2015.   This is a free and informal event and is aimed at anyone whose seizures are not controlled by medication.  There will be speakers introducing other possib Read More »

Report side effects!

Report side effects!

Have you ever experienced any side effects, including any breakthrough seizures, when switching between different brands/versions of your usual anti-epileptic drug (AED)?  If yes, the MHRA (Medicines and Healthcare Regulatory Authority) want to hear from you via their Yellow Card scheme.

If you have a suspicion that a side effect or seizure occurred because you were given a different brand or generic version Read More »

Perampanel and the oral contraceptive

Perampanel and the oral contraceptive

A new study published in the journal Epilepsia has found that higher doses of perampanel (Fycompa) can reduce the effectiveness of the oral contraceptive pill. This could increase the chance of an unplanned pregnancy.  If you are taking both perampanel and a hormonal contraceptive, you should speak to your GP, regardless of the dose.  There are a number of other anti-epileptic drugs that can also reduce th Read More »

Helping Scottish Police Officers recognise seizures

Helping Scottish Police Officers recognise seizures

Our new awareness campaign is kicking off today with the launch of our new training DVD for Crown Office staff and Police Scotland officers.  The awareness raising tool shows what seizure-related behaviour looks like and features real life scenarios such as 'suspects having uncontrolled complex seizures appearing to be 'drunk and disorderly' and appearing to resist arrest.  For more information about the DVD and our launch tonight, please chec Read More »

Plastic bag charge - please keep us in mind

Plastic bag charge - please keep us in mind

As of 20 October 2014 retailers in Scotland will have to charge 5p for every plastic carrier bag.  Most retailers have kindly agreed to donate this money to charity.  If you are a retailer, would you consider us as your chosen charity?  Or do you know any shops who may be willing to donate this bag charge to us?  If you have any ideas or suggestions, please email fundraising@epilepsyscotland.org.uk or call 0141 427 4911.
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It's competition time!

It's competition time!

Get creative, come up with a logo for the new International Epilepsy Day.  This is a competition run by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) with a prize money for the winning entry of $250.  Closing date is 31 October 2014.

 For more information and details of how to apply visit the IBE webs Read More »

Drug alerts for Buccal Midazolam

Drug alerts for Buccal Midazolam

Please note 2 drug alerts have recently been issued for Buccal Midazolam by the Medicines and Healthcare Products Regulatory Agency (MHRA).   These affect the following:

Midazolam Buccal Liquid 10mg/1ml, 5ml, manufactured by Penn Pharma, distributed in Quantum Pharma livery.   The reason for this recall is that the screw caps on some of the units have not been correctly placed during manufacture.  This may result in evapo Read More »

Have your say about PIP (Personal Independence Payment)!

Have your say about PIP (Personal Independence Payment)!

As part of its ‘Your Say’ initiative, the Welfare Reform Committee of the Scottish Parliament has asked Epilepsy Scotland to share the experiences of people with epilepsy around Personal Independence Payments (PIP).

PIP has replaced Disability Living Allowance (DLA) for people aged 16 to 64 who have care needs, and/or mobility needs.

The idea is that the Committee gathers experiences and views from people with experience of applyi Read More »

We want to hear from you!

We want to hear from you!

This year's theme for National Epilepsy Week 2014 (18-24 May 2014) is ‘Transforming lives’.   If you have epilepsy, or are a carer and/or family member of someone with epilepsy, we want to hear from you.  What do you think we should be doing to change lives for the better in the coming year?
 
In particular, what key issue do you want us to pursue in the next 12 months that would transform the lives of people with epilepsy?&nbs Read More »

New definition for epilepsy - tell us what you think!

New definition for epilepsy - tell us what you think!

The International League Against Epilepsy (ILAE) has published a new definition of epilepsy.  The purpose of this is to give practical help to doctors in making a clinical diagnosis and potentially starting treatment.  It also recognises that some people may ‘outgrow’ their epilepsy.

The ILAE considers that epilepsy is defined by any of the following:

1.    At least two unprovoked (or r Read More »

Become a thunderous supporter

Become a thunderous supporter

Join our Thunderclap campaign to add your voice to our Purple Day message  “Think drink Think drugs Think seizure! People who look drunk or on drugs may be having a seizure #epilepsy #purpleday"

To join in the message, all you need to do is follow this link and either click on the facebook, twitter or tumblr icon.  By doing this, you allow Thunderclap to send our Read More »

Drug Alert: Phenytoin sodium hard capsules

Drug Alert: Phenytoin sodium hard capsules

The Medicines and Healthcare products Regulatory Agency (MHRA) say that phenytoin sodium hard capsules should not be interchanged.  This is because slight changes in the way the drug is manufactured can affect seizure control.  Flynn Pharma Ltd have been the only drug company supplying these capsules to the UK market.  A new generic version of phenytoin sodium hard capsules, produced by NRIM Limited, is now being stocked by some of the major high street chai Read More »