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The Scottish Government is seeking views on what a new Scottish Social Security system should look like. We think it’s really important that the voice of people with epilepsy is heard in this process. So, if you have epilepsy, or are the carer of someone with epilepsy, and have had experience of claiming disability-related benefits such as PIP, DLA and Carers Allowance we want to hear from you. The survey is short and gives you a chance to tell us about y Read More »
We are delighted to announce the appointment of our new Patron, Laura Gordon.
Laura has been a valued supporter of Epilepsy Scotland for a number of years and has taken on this role to formalise her support. As Patron, Laura will champion Epilepsy Scotland and the work that we do. You will see Laura at many of our events working alongside our team to raise awareness of epilepsy and Epilepsy Scotland.
On her new role Laura said, &ldqu Read More »
In light of recent media interest in court cases involving seizures and driving, take a look at the following information which summarises current regulations:
Epilepsy Scotland statement on seizures while driving:
Blackouts while driving may happen for a variety of reasons including a heart attack, a sudden change in blood pressure levels, hypoglycaemia, stroke or seizure. Seizures can happen at any age and often without warni Read More »
We have moved office and are now at SPACE, 11 Harewood Road, Edinburgh EH16 4NT, Tel 0131 659 4730. It's business as usual, so if you live in Edinburgh and need support or help, please get in touch with our Edinburgh staff. There is plenty of free parking. If you use public transport, there are buses to Craigmillar from the city centre, and the bus stop is only a 5 minutes walk to our office. If you need directions, or just want a guided Read More »
Get people talking about epilepsy as they tuck into special edition Mothers Pride® at breakfast time. All standard cut Mothers PrideRead More »
Please help us gather information about living with epilepsy to inform the approval of a new epilepsy drug in Scotland!
Epilepsy Scotland is gathering anonymous information from people with epilepsy, their families and carers to help inform the Scottish Medicines Consortium (SMC) when they assess a new epilepsy drug, 'Briviact' (Brivaracetam).
The SMC is the body which decides whether new medicines should be made av Read More »
Only a few months into his new role, Tom Davies, has already been busy raising awareness for epilepsy. In the run-up to international Purple Day, Tom and our corporate fundraiser Scott Barclay were interviewed on STV Glasgow’s Live at Five show. That same weekend, Tom stood and shared his experiences of epilepsy for the first time with an audience of over 120 guests attending our inaugural gala cabaret evening fundraiser at the Village Hotel in Glasgow. & Read More »
Over 1,200 people with epilepsy in Dumfries and Galloway are now getting help from a local Epilepsy Specialist Nurse (ESN) instead of travelling miles to other health boards, thanks to a successful new funding model of healthcare devised by Epilepsy Scotland. This unique three year collaboration with the NHS and pharmaceutical companies UCB Pharma and GSK means epilepsy patients also benefit from better equipped GPs, practice and learni Read More »
Please join our Thunderclap campaign to add your voice to our Purple Day message: “Epilepsy is more than just seizures. Help raise awareness to ‘see past the seizure’. #purpleday #epilepsy”
Hot off the press: new dates for our next round of free epilepsy training as part of our Bridging the Gap project. We will be visiting Pitlochry, Fort William and Inverness in November, so get these dates in your diaries. All participants will get a certificate for 3 CPD points. Please BOOK IN ADVANCE by emailing email@example.com or call Ian on 0141 427 491.
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There is some good news if you are concerned about SUDEP (Sudden Unexplained Death in Epilepsy). In collaboration with NHS, clinicians and other professionals, SUDEP Action have just launched the first ever self-monitoring app that allows a person with epilepsy to self-monitor known risk factors.
Every year, epilepsy organisations around the country double their efforts to spread the word about epilepsy and raise awareness. Unlike other years, this year has no set theme, so the focus is on you. Are you planning an event? We'd love to hear from you. Don't forget to send in your photos to firstname.lastname@example.org or share them on our facebook or twitter pages. Read More »