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Latest news

Drug alerts for Buccal Midazolam

Drug alerts for Buccal Midazolam

Please note 2 drug alerts have recently been issued for Buccal Midazolam by the Medicines and Healthcare Products Regulatory Agency (MHRA).   These affect the following:

Midazolam Buccal Liquid 10mg/1ml, 5ml, manufactured by Penn Pharma, distributed in Quantum Pharma livery.   The reason for this recall is that the screw caps on some of the units have not been correctly placed during manufacture.  This may result in evapo Read More »

Have your say about PIP (Personal Independence Payment)!

Have your say about PIP (Personal Independence Payment)!

As part of its ‘Your Say’ initiative, the Welfare Reform Committee of the Scottish Parliament has asked Epilepsy Scotland to share the experiences of people with epilepsy around Personal Independence Payments (PIP).

PIP has replaced Disability Living Allowance (DLA) for people aged 16 to 64 who have care needs, and/or mobility needs.

The idea is that the Committee gathers experiences and views from people with experience of applyi Read More »

We want to hear from you!

We want to hear from you!

This year's theme for National Epilepsy Week 2014 (18-24 May 2014) is ‘Transforming lives’.   If you have epilepsy, or are a carer and/or family member of someone with epilepsy, we want to hear from you.  What do you think we should be doing to change lives for the better in the coming year?
 
In particular, what key issue do you want us to pursue in the next 12 months that would transform the lives of people with epilepsy?&nbs Read More »

New definition for epilepsy - tell us what you think!

New definition for epilepsy - tell us what you think!

The International League Against Epilepsy (ILAE) has published a new definition of epilepsy.  The purpose of this is to give practical help to doctors in making a clinical diagnosis and potentially starting treatment.  It also recognises that some people may ‘outgrow’ their epilepsy.

The ILAE considers that epilepsy is defined by any of the following:

1.    At least two unprovoked (or r Read More »

Become a thunderous supporter

Become a thunderous supporter

Join our Thunderclap campaign to add your voice to our Purple Day message  “Think drink Think drugs Think seizure! People who look drunk or on drugs may be having a seizure #epilepsy #purpleday"

To join in the message, all you need to do is follow this link and either click on the facebook, twitter or tumblr icon.  By doing this, you allow Thunderclap to send our Read More »

Drug Alert: Phenytoin sodium hard capsules

Drug Alert: Phenytoin sodium hard capsules

The Medicines and Healthcare products Regulatory Agency (MHRA) say that phenytoin sodium hard capsules should not be interchanged.  This is because slight changes in the way the drug is manufactured can affect seizure control.  Flynn Pharma Ltd have been the only drug company supplying these capsules to the UK market.  A new generic version of phenytoin sodium hard capsules, produced by NRIM Limited, is now being stocked by some of the major high street chai Read More »

We've become a Third Party Reporting Centre!

We've become a Third Party Reporting Centre!

We are very pleased to announce that Epilepsy Scotland has joined the growing list of organisations providing a Third Party Reporting service to their local community.   Any individual wishing to report a hate crime but is reluctant to go to the police direct can now phone our helpline 0808 800 2200 or drop into our Glasgow office and ask for help with reporting a hate cri Read More »

Cannabis in the news

Cannabis in the news

There has been much in the international press and on television recently about the apparent profound improvement of seizure management of some people with refractory epilepsy as a result of medical marihuana (cannabinoids).   

Epilepsy Scotland acknowledges the ongoing distress, challenges, difficulties and unending uncertainty that exist when living with someone who has numerous seizures a day combined with the constant risk of significant injury Read More »

Free self-management seminars

Free self-management seminars

Come and join us at one of our two free self-management seminars this year in Edinburgh, which we are running in partnership with our partner, the PBC Foundation.  The seminars will focus on living with a long term health condition such as epilepsy.   This is a unique opportunity to learn more about:

• The links between your body and brain
Read More »

NEW Introduction to Child Protection Course

NEW Introduction to Child Protection Course

Just added: Introduction to Child Protection - aimed at anyone who works in the care sector, eg nurseries, playgroup, support workers or volunteers.  This is an introductory course and no specific child protection skills are needed.  The course will help

  • identify what is meant by child protection and child abuse;
  • know the categories of Read More »

Edinburgh Fun Day

Edinburgh Fun Day

Come and meet us in Edinburgh next Saturday, 26 October. We are having our AGM in the morning but anyone can come along from 13.15pm onwards (until 15.15pm) to meet some of our staff, have a chat, find out more about epilepsy and our services, and to buy your Christmas cards and other gifts from us. We will also have a number of workshops to entertain the whole family, including face painting and music works Read More »

NEW: information for parents

NEW: information for parents

Does your child have epilepsy?  Check out our new information resource 'Everything you need to know about epilepsy - for parents', which may be particularly useful for anyone new to epilepsy.

The resource packs consists of 25 individual factsheets, all of which can be downloaded free of charge here .  If you have difficulty with downloading/printing, please let us know. Read More »

Training reaches new heights

Training reaches new heights

In our fight to combat ignorance, stigma and discrimination, we have provided epilepsy training to over 10,000 people in Scotland to date.   Our training is delivered by highly experienced professionals and aims to raise awareness of this neuro Read More »