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As part of its ‘Your Say’ initiative, the Welfare Reform Committee of the Scottish Parliament has asked Epilepsy Scotland to share the experiences of people with epilepsy around Personal Independence Payments (PIP).
PIP has replaced Disability Living Allowance (DLA) for people aged 16 to 64 who have care needs, and/or mobility needs.
The idea is that the Committee gathers experiences and views from people with experience of applyi Read More »
This year's theme for National Epilepsy Week 2014 (18-24 May 2014) is ‘Transforming lives’. If you have epilepsy, or are a carer and/or family member of someone with epilepsy, we want to hear from you. What do you think we should be doing to change lives for the better in the coming year?
In particular, what key issue do you want us to pursue in the next 12 months that would transform the lives of people with epilepsy?&nbs Read More »
The International League Against Epilepsy (ILAE) has published a new definition of epilepsy. The purpose of this is to give practical help to doctors in making a clinical diagnosis and potentially starting treatment. It also recognises that some people may ‘outgrow’ their epilepsy.
The ILAE considers that epilepsy is defined by any of the following:
1. At least two unprovoked (or r Read More »
Join our Thunderclap campaign to add your voice to our Purple Day message “Think drink Think drugs Think seizure! People who look drunk or on drugs may be having a seizure #epilepsy #purpleday"
The Medicines and Healthcare products Regulatory Agency (MHRA) say that phenytoin sodium hard capsules should not be interchanged. This is because slight changes in the way the drug is manufactured can affect seizure control. Flynn Pharma Ltd have been the only drug company supplying these capsules to the UK market. A new generic version of phenytoin sodium hard capsules, produced by NRIM Limited, is now being stocked by some of the major high street chai Read More »
We are very pleased to announce that Epilepsy Scotland has joined the growing list of organisations providing a Third Party Reporting service to their local community. Any individual wishing to report a hate crime but is reluctant to go to the police direct can now phone our helpline 0808 800 2200 or drop into our Glasgow office and ask for help with reporting a hate cri Read More »
There has been much in the international press and on television recently about the apparent profound improvement of seizure management of some people with refractory epilepsy as a result of medical marihuana (cannabinoids).
Epilepsy Scotland acknowledges the ongoing distress, challenges, difficulties and unending uncertainty that exist when living with someone who has numerous seizures a day combined with the constant risk of significant injury Read More »
Come and join us at one of our two free self-management seminars this year in Edinburgh, which we are running in partnership with our partner, the PBC Foundation. The seminars will focus on living with a long term health condition such as epilepsy. This is a unique opportunity to learn more about:
• The links between your body and brain
Read More »
Just added: Introduction to Child Protection - aimed at anyone who works in the care sector, eg nurseries, playgroup, support workers or volunteers. This is an introductory course and no specific child protection skills are needed. The course will help
Come and meet us in Edinburgh next Saturday, 26 October. We are having our AGM in the morning but anyone can come along from 13.15pm onwards (until 15.15pm) to meet some of our staff, have a chat, find out more about epilepsy and our services, and to buy your Christmas cards and other gifts from us. We will also have a number of workshops to entertain the whole family, including face painting and music works Read More »
Does your child have epilepsy? Check out our new information resource 'Everything you need to know about epilepsy - for parents', which may be particularly useful for anyone new to epilepsy.
The resource packs consists of 25 individual factsheets, all of which can be downloaded free of charge here . If you have difficulty with downloading/printing, please let us know. Read More »
Epilepsy Scotland is excited to announce a great deal on travel insurance for people with epilepsy. We have teamed up with Medical Travel Compared - a travel insurance comparison site with a difference. Medical Travel Compared specialise in comparing insurance companies who offer policies to people with health conditions such as epilepsy. For every travel insurance pol Read More »