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There is some good news if you are concerned about SUDEP (Sudden Unexplained Death in Epilepsy). In collaboration with NHS, clinicians and other professionals, SUDEP Action have just launched the first ever self-monitoring app that allows a person with epilepsy to self-monitor known risk factors.
Every year, epilepsy organisations around the country double their efforts to spread the word about epilepsy and raise awareness. Unlike other years, this year has no set theme, so the focus is on you. Are you planning an event? We'd love to hear from you. Don't forget to send in your photos to email@example.com or share them on our facebook or twitter pages. Read More »
Epilepsy Scotland congratulated for SUDEP research.
Epilepsy Scotland has collaborated with the Scottish Government to bring to light the thoughts of young people with epilepsy on SUDEP (Sudden and Unexpected Death in Epilepsy). It has emerged that mRead More »
Unanimous backing for new WHO resolution on tackling epilepsy
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EVENT CANCELLATION - we regret to inform that this event had to be postponed. We will publish the new date and further details in due course.
Epilepsy Scotland is pleased to announce an exciting new information event taking place at the AK Bell Library in Perth on Saturday, 2 May 2015. This is a free and informal event and is aimed at anyone whose seizures are not controlled by medication. There will be speakers introducing other possibl Read More »
Have you ever experienced any side effects, including any breakthrough seizures, when switching between different brands/versions of your usual anti-epileptic drug (AED)? If yes, the MHRA (Medicines and Healthcare Regulatory Authority) want to hear from you via their Yellow Card scheme.
If you have a suspicion that a side effect or seizure occurred because you were given a different brand or generic version Read More »
A new study published in the journal Epilepsia has found that higher doses of perampanel (Fycompa) can reduce the effectiveness of the oral contraceptive pill. This could increase the chance of an unplanned pregnancy. If you are taking both perampanel and a hormonal contraceptive, you should speak to your GP, regardless of the dose. There are a number of other anti-epileptic drugs that can also reduce th Read More »
Our new awareness campaign is kicking off today with the launch of our new training DVD for Crown Office staff and Police Scotland officers. The awareness raising tool shows what seizure-related behaviour looks like and features real life scenarios such as 'suspects having uncontrolled complex seizures appearing to be 'drunk and disorderly' and appearing to resist arrest. For more information about the DVD and our launch tonight, please chec Read More »
As of 20 October 2014 retailers in Scotland will have to charge 5p for every plastic carrier bag. Most retailers have kindly agreed to donate this money to charity. If you are a retailer, would you consider us as your chosen charity? Or do you know any shops who may be willing to donate this bag charge to us? If you have any ideas or suggestions, please email firstname.lastname@example.org or call 0141 427 4911.
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Get creative, come up with a logo for the new International Epilepsy Day. This is a competition run by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) with a prize money for the winning entry of $250. Closing date is 31 October 2014.
Please note 2 drug alerts have recently been issued for Buccal Midazolam by the Medicines and Healthcare Products Regulatory Agency (MHRA). These affect the following:
Midazolam Buccal Liquid 10mg/1ml, 5ml, manufactured by Penn Pharma, distributed in Quantum Pharma livery. The reason for this recall is that the screw caps on some of the units have not been correctly placed during manufacture. This may result in evapo Read More »
As part of its ‘Your Say’ initiative, the Welfare Reform Committee of the Scottish Parliament has asked Epilepsy Scotland to share the experiences of people with epilepsy around Personal Independence Payments (PIP).
PIP has replaced Disability Living Allowance (DLA) for people aged 16 to 64 who have care needs, and/or mobility needs.
The idea is that the Committee gathers experiences and views from people with experience of applyi Read More »
This year's theme for National Epilepsy Week 2014 (18-24 May 2014) is ‘Transforming lives’. If you have epilepsy, or are a carer and/or family member of someone with epilepsy, we want to hear from you. What do you think we should be doing to change lives for the better in the coming year?
In particular, what key issue do you want us to pursue in the next 12 months that would transform the lives of people with epilepsy?&nbs Read More »