Graham

Why I volunteer for Epilepsy Scotland: Graham’s story

Graham has been volunteering with Epilepsy Scotland as a trustee since 2021 and took up the role of Vice-Chairperson last year. He shares why he decided to volunteer and what he has gained from volunteering.

 

How did you become involved with Epilepsy Scotland?

I became involved with Epilepsy Scotland after being diagnosed with epilepsy in 2017 following my second tonic clonic seizure.

After using the Epilepsy Scotland helpline for advice and also the Wellbeing Service, I wanted to support the charity so they were able to continue supporting others with epilepsy.

I completed a sponsored zip slide across the River Clyde and the seven summits challenge around Edinburgh to raise funds.

 

Why did you decide to volunteer and be a part of Epilepsy Scotland’s board?

I wanted to continue supporting Epilepsy Scotland but there is a limit to the number of zip slides I’m prepared to do!

When I saw the advert for new trustees I initially wondered if this was something I was even able to do if I had epilepsy.

Rather than rule myself out, I decided to apply as I had some of the skills they were looking for.

I wanted to be more directly involved in shaping the organisation’s strategies and initiatives to better serve people affected by epilepsy.

 

What are the main responsibilities of being a trustee?

As a trustee, my main responsibilities include managing risks; ensuring legal and financial compliance; acting in the interests of the charity; and representing the interests of Epilepsy Scotland’s service users.

 

What is the best part of being a volunteer?

The best part of being a volunteer is knowing that my efforts are making a difference to the lives of those affected by epilepsy.

I work with a great group of people on the board from a diverse range of personal and professional backgrounds.

We are all totally committed to the long-term future of Epilepsy Scotland.

I also get to see up close the amazing work that is done by the staff and other volunteers at Epilepsy Scotland. I’m constantly impressed by the dedication of everyone involved with the charity.

 

What do you think you’ve gained from volunteering with Epilepsy Scotland?

Volunteering with Epilepsy Scotland has improved my understanding of both the medical and social impacts of the condition.

I’ve gained valuable skills in leadership, governance, and advocacy, and formed meaningful connections with fellow volunteers and our committed colleagues.

It has also given me the confidence that the skills I’ve gained at work can be used elsewhere to make a difference.

 

What would say to someone who is looking to be a volunteer for Epilepsy Scotland?

To someone looking to volunteer for Epilepsy Scotland, I would say: seize the opportunity to make a meaningful impact in your community.

Whether it’s through fundraising, awareness campaigns, or direct support, your contributions can truly change lives for the better.

If you aren’t sure how to get started, contact one of the team and they’ll let you know how you can help – that’s what I did.

To find out how you can volunteer for Epilepsy Scotland, please click here.