Time to talk day

The hidden mental health impact of living with epilepsy

Today marks Time to Talk Day, the nation’s biggest mental health conversation.

As Epilepsy Scotland’s Communications Officer, I’ve had the privilege of hearing many stories from our community, and one thing becomes crystal clear: epilepsy impacts far more than just the physical aspects of life.

Our recent mental health survey revealed some striking statistics – 54% of respondents reported that epilepsy significantly affected their mental health.

One in three people experienced depression, while nearly half dealt with anxiety.

These numbers tell an important story, but behind each statistic is a person navigating daily challenges that many of us take for granted.

Imagine planning your day with an ever-present question mark: “Will I have a seizure?” Something as simple as catching a bus, going shopping, or meeting friends for coffee becomes an exercise in courage.

While I can’t fully understand what it’s like to live with epilepsy, these shared experiences have opened my eyes to the profound impact it has on mental wellbeing.

I’m no stranger to mental health challenges myself. Through my own journey, I’ve discovered that the simple act of talking – whether to friends, family, or a helpline – can feel like lifting a weight from your shoulders.

Yes, it’s daunting to open up. Finding the right words to describe your feelings while wrestling with the fear of judgment isn’t easy. But that first conversation can be the beginning of positive change.

If someone trusts you enough to share their mental health struggles, here’s how you can provide meaningful support.

 

Create space for conversation

Sometimes the best conversations happen in unexpected moments – during a walk, while cooking together, or even stuck in traffic.

The setting matters less than your willingness to listen and understand. Try asking open questions like “How does that affect you?” or “What does it feel like?”

These simple prompts can help someone express their experiences without feeling judged.

 

Listen without fixing

When someone we care about is struggling, our natural instinct is to solve their problems.

However, recovery from mental health challenges is often a gradual journey.

Sometimes, the most powerful thing you can do is simply listen. Unless they specifically asked for advice, your attentive ear is the best support you can offer.

 

Maintain normalcy

Remember – a mental health challenge doesn’t define a person. They’re still the same friend, family member, or colleague you’ve always known.

Keep your relationship natural and continue doing the things you’ve always enjoyed together.

Often, treating someone differently is the last thing they want when they’ve opened up about their mental health.

 

Practice patience

Not everyone is ready to talk, and that’s okay. By showing you’re open to conversation, you’re creating a safe space they might return to when the time feels right.

If you’re living with epilepsy and struggling with your mental health, please remember you’re not alone.

Our dedicated helpline (0808 800 2200) and email support at contact@epilepsyscotland.org.uk are here for you, offering a confidential space to share your thoughts and feelings.

Let’s make every day a Time to Talk day, fostering understanding and support within our community.