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A heart-wrenching documentary highlighting the devastating impact of epilepsy has earned Epilepsy Scotland a coveted spot on the shortlist for the Smiley Charity Film Awards, the world’s largest cause-based film campaign. The moving film tells the story of Graeme, a 35-year-old who tragically lost his life to epilepsy, through the eyes of his mother Irene …
Lauren was diagnosed with epilepsy in November last year. She shares how she felt when diagnosed with epilepsy, the challenges faced and how Epilepsy Scotland’s Helpline has helped her. Can you tell us how your got diagnosed with epilepsy? I got diagnosed in November last year. I’d been having these weird almost de ja …
Deri’s mother passed away two years ago due to epilepsy. He shares why he has decided to fundraise for Epilepsy Scotland as a way to keep his mum’s memory alive. Why did you decide to fundraise for Epilepsy Scotland? My mum had epilepsy and was diagnosed in her 30s. She died two years ago. …
Nicole was diagnosed with epilepsy when she was 13 years old. She shares the impact epilepsy has had on her mental health and the challenges she has faced looking after her two girls. What type of seizures do you have? How does it affect you? I was only taking focal seizures which was just …
Mason was diagnosed with epilepsy three years ago. His mother Nicola shares how he got diagnosed, the challenges he has faced and how Epilepsy Scotland’s Purple Pandas group has helped him. Following four focal seizures, Mason (aged nine years old at this time) was diagnosed with epilepsy three years ago. His childminder noticed the first …
Chloe was diagnosed with epilepsy when she was just 11 years old after falling backwards in the doorway of her living room into a tonic-clonic seizure. She shares her experiences and the impact living with epilepsy has had on her life. How did you feel when you were first diagnosed with epilepsy? Obviously being …
Today marks Time to Talk Day, the nation’s biggest mental health conversation. As Epilepsy Scotland’s Communications Officer, I’ve had the privilege of hearing many stories from our community, and one thing becomes crystal clear: epilepsy impacts far more than just the physical aspects of life. Our recent mental health survey revealed some striking statistics – …
One of our social media followers shares their experiences of post-ictal psychosis and how their diagnosis of epilepsy has changed their life. Have you heard of post-ictal psychosis? I hadn’t. In the summer of 2023, I was waking up in hospital and was clearly unwell; what happened next feels very unclear. Epilepsy diagnosis I …
Marion’s daughter Marsaili was diagnosed with epilepsy when she was 10 years old. She shares the challenges she has faced as a parent of a child with epilepsy and the impact her daughter’s diagnosis has had on her mental health. Can you tell us a bit of background on how your daughter was diagnosed …
Ashley’s daughter Emma was recently diagnosed with epilepsy. She shares her story and how Emma’s diagnosis has impacted her family. Emma was diagnosed in September 2022 after her second tonic-clonic seizure. Her first seizure happened out of the blue in January 2022 when she was just over one and half years old. After initially speaking …
On Parent Mental Health Day (30 January 2025), our Communications Officer David shares some strategies to help maintain your mental wellbeing whilst looking after a child with epilepsy. Life changes dramatically when your child is diagnosed with epilepsy. While all parents know the daily juggle of responsibilities, adding a child’s epilepsy diagnosis to the mix …
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