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26 churches, 26 miles: Naomi’s Purple Day pilgrimage for Epilepsy Scotland

On Purple Day (26 March), Naomi will be walking 26 miles past 26 churches to raise money and awareness for Epilepsy Scotland. Naomi shares why she is taking on this challenge and her own personal experience of living with epilepsy. I was diagnosed with epilepsy in my early twenties. I had a seizure at home …

#TalkEpilepsyPodcast – New epilepsy diagnosis

Whether you’re newly diagnosed, supporting someone who is, or simply want to understand more about epilepsy’s life-changing effects – this episode of our #TalkEpilepsyPodcast is for you. Our latest #TalkEpilepsyPodcast features Emma, who received her epilepsy diagnosis at just 19 years old. Hear her powerful story alongside insights from Stuart, our Helpline and Information Officer, …

Two generations, one journey: Claire’s story

Claire’s experience with epilepsy spans decades, from her own diagnosis as a teenager to later watching her young son Jack face the same condition. Her story is one of personal struggle, unexpected challenges, and finding strength in the face of uncertainty. When I was first diagnosed, I felt angry. Being a teenager and receiving this …

From denial to empowerment: Lauren’s journey with epilepsy

At age 20, Lauren was diagnosed with epilepsy after experiencing multiple seizures that led to a medically induced coma in September 2022. Initially rejecting her diagnosis and struggling with medication side effects, she later discovered her condition was stress and exhaustion-induced. Read her story below. Can you tell us how you got diagnosed with …

Kelpies Experience

Powerful epilepsy documentary shortlisted for prestigious film award

A heart-wrenching documentary highlighting the devastating impact of epilepsy has earned Epilepsy Scotland a coveted spot on the shortlist for the Smiley Charity Film Awards, the world’s largest cause-based film campaign. The moving film tells the story of Graeme, a 35-year-old who tragically lost his life to epilepsy, through the eyes of his mother Irene …

Helplines Awareness Day: Lauren’s story

Lauren was diagnosed with epilepsy in November last year. She shares how she felt when diagnosed with epilepsy, the challenges faced and how Epilepsy Scotland’s Helpline has helped her. Can you tell us how your got diagnosed with epilepsy? I got diagnosed in November last year. I’d been having these weird almost de ja …

Honouring my mum through fundraising for Epilepsy Scotland

Deri’s mother passed away two years ago due to epilepsy. He shares why he has decided to fundraise for Epilepsy Scotland as a way to keep his mum’s memory alive. Why did you decide to fundraise for Epilepsy Scotland? My mum had epilepsy and was diagnosed in her 30s. She died two years ago. …

Living with epilepsy: A mother’s journey

Nicole was diagnosed with epilepsy when she was 13 years old. She shares the impact epilepsy has had on her mental health and the challenges she has faced looking after her two girls. What type of seizures do you have? How does it affect you? I was only taking focal seizures which was just …

Mason’s epilepsy journey: From diagnosis to Purple Pandas support

Mason was diagnosed with epilepsy three years ago. His mother Nicola shares how he got diagnosed, the challenges he has faced and how Epilepsy Scotland’s Purple Pandas group has helped him. Following four focal seizures, Mason (aged nine years old at this time) was diagnosed with epilepsy three years ago. His childminder noticed the first …

Living with epilepsy: Chloe’s journey from diagnosis to acceptance

Chloe was diagnosed with epilepsy when she was just 11 years old after falling backwards in the doorway of her living room into a tonic-clonic seizure. She shares her experiences and the impact living with epilepsy has had on her life. How did you feel when you were first diagnosed with epilepsy? Obviously being …

The hidden mental health impact of living with epilepsy

Today marks Time to Talk Day, the nation’s biggest mental health conversation. As Epilepsy Scotland’s Communications Officer, I’ve had the privilege of hearing many stories from our community, and one thing becomes crystal clear: epilepsy impacts far more than just the physical aspects of life. Our recent mental health survey revealed some striking statistics – …

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Registered in Scotland No. 163987. Scottish Charity No: SC000067.
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