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Living with epilepsy: Elouise’s story

Elouise was diagnosed with epilepsy five years ago. She shares why epilepsy is more than seizures and the support that she has received which has helped her come to terms with her diagnosis. Can you tell us about how you got diagnosed with epilepsy? In 2017, I started to have convulsive seizures, but it …

Queen’s Park FC honours Epilepsy Scotland’s 70th anniversary with commemorative strip

Queen’s Park Football Club has marked Epilepsy Scotland’s 70th anniversary with the presentation of a special commemorative strip, celebrating a decade-long partnership born from a touching story of community spirit and remembrance. In a ceremony at Epilepsy Scotland’s Govan headquarters, Queen’s Park representatives presented the commemorative shirt to Chief Executive Lesslie Young OBE as part …

More than seizures: Ben opens up about mental health

Meet Ben, our latest #TalkEpilepsyPodcast guest, as he opens up about his powerful journey with epilepsy and mental health. His story might just be the conversation you or someone you know needs to hear today. In this raw and honest episode, Ben shares: His diagnosis at age 14 The unexpected emotional challenges How he found …

Young People With Epilepsy Participate In Prestigious Speaking Competition

Yesterday (29 October) three young people living with epilepsy participated in a once in a lifetime event at the Court of Sessions in Edinburgh organised by Epilepsy Scotland and the Crown Office and Procurator Fiscal’s Office as part of the 70th anniversary celebrations of Epilepsy Scotland. Dylan Graham from Stirling, Alexander Sieland from Edinburgh and …

Losing a loved one to epilepsy- Hart family shares Graeme’s story

Irene lost her son Graeme in early 2023 to epilepsy. Graeme’s sister Carolann and Irene share the impact this has had on the family and why they are sharing their story to help raise awareness of SUDEP. This film contains content relating to Sudden Unexplained Death in Epilepsy which some viewers may find distressing. Irene …

Lyn’s epilepsy journey: How Wellbeing Service helped me

Lyn shares how she felt when she was diagnosed with epilepsy and how Epilepsy Scotland’s Wellbeing Service helped her after a serious car accident. Can you tell us a bit about how you got diagnosed with epilepsy and how did you feel when you were first diagnosed? I don’t remember that far back because …

Children’s Hoodies

Soft cotton faced fabric.
Brushed back fleece.
Drop shoulder style.
Double fabric hood.
No drawcords to comply with EU regulations.
Front pouch pocket.
Ribbed cuffs and hem.
Twin needle stitching.
Tear out label.

80% ringspun cotton/20% polyester.

Video telemetry for seizure monitoring: Dave’s diary part two

Our volunteer Dave, recently had a video telemetry stay at the Clinical Neurophysiology Department, Royal Infirmary in Edinburgh. He kept a diary of his experiences. Here is part two of his stay. Day Five Had a seizure on awakening this morning and was very emotional on recovery, probably due to the reduced medication. As hard …

Video telemetry for seizure monitoring: Dave’s diary part one

Video telemetry is used to help Neurologists to determine what’s going on with uncontrolled seizures. It involves a stay in hospital for several days. During the stay wires are attached to the head and the EEG equipment is turned on along with video cameras. The patient is isolated in a private room and is recorded …

Remembering George Neil Rigby: A family’s experience with SUDEP

George Neil Rigby passed away due to Sudden Unexpected Death in Epilepsy (SUDEP), at his home in August 2023, just three months after his 21st birthday. His mother Aileen, Uncle Donald, Auntie Ruth and his Grandma share their memories of George Neil Rigby and the help and support they have received after he sadly passed …

SUDEP Action Day: Angela’s story

Angela’s husband Mark sadly passed away due to Sudden Unexpected Death in Epilepsy in June 2010. On SUDEP Action Day, Angela shares her memories of Mark and why more awareness of SUDEP is needed. If you have been affected by SUDEP, please phone our helpline on 0808 800 2200 or contact SUDEP Action at www.sudep.org.uk …

Talk Epilepsy Podcast: SUDEP Action Day

Tomorrow marks SUDEP Action Day, shining a light on Sudden Unexplained Death in Epilepsy. It is a sobering reality that nearly 300 lives are lost to epilepsy each year in Scotland alone. We talked to Sammy Ashby, Chief Executive at SUDEP Action to discuss the work that the charity does to help bereaved families. Also, we …

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Registered in Scotland No. 163987. Scottish Charity No: SC000067.
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