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#StudentSeptember – Freya’s story

Epilepsy Scotland’s Student Ambassador Freya sadly lost her sister Ellie to Sudden Unexplained Death in Epilepsy (SUDEP) in 2020. Freya explains the importance for those without epilepsy to educate themselves on the condition and why she volunteered for Epilepsy Scotland. What is your experience of epilepsy from an outside perspective? Epilepsy has been intertwined …

#StudentSeptember – Amelia’s story

Amelia has been living with epilepsy since September 2021 during her first year at university. She shares how she felt about being diagnosed with epilepsy and why she urges for more university staff to be first aid trained and able to help someone having a seizure. During Fresher’s week of my first year as a …

Epilepsy charities call for more choice on care

Today, 12 September, an association of organisations representing the epilepsy community in Scotland published a new report which calls on the need for people with epilepsy to be given the choice about their care. In the report, titled Specialist Epilepsy Appointments, Epilepsy Consortium Scotland notes that in the wake of the COVID-19 pandemic the format …

#StudentSeptember – Ella’s story

Ella was just 19 when she experienced her first tonic-clonic seizure. She shares how she felt when she was diagnosed and the challenges she faced being diagnosed with epilepsy during her first year at university. How did you feel when you were first diagnosed with epilepsy? I was first informed of my epilepsy diagnosis …

The #StudentSeptember campaign

Our Student Ambassador Chloe Smith provides more information about our #StudentSeptember campaign. In 2021, a student named Orla White contacted Epilepsy Scotland about raising awareness in universities and colleges across Scotland. Through collaboration, Orla and Epilepsy Scotland created the Student Campaign, with Orla being our first Student Ambassador. Orla worked closely with our (then) Policy …

Having temporal lobe epilepsy in my 50s

Trevor was diagnosed with temporal lobe epilepsy in his 50s. Here he shares his experiences of being diagnosed and the challenges he has faced. The words didn’t just stop flowing, they stopped altogether. Fuzz! I was withdrawn from my surrounding environment. Fuzz! My eyes were locked in one position. A part of my brain knew …

#TalkEpilepsy – Scott’s story

Scott was diagnosed with epilepsy when he was very young. He shares his experiences of living with the neurological condition. I was told by my family members, that when I was older, I had epilepsy and also had meningitis which was a very scary thing to understand. What happened was every time a seizure came …

Festive Tree Gift Wrap

Our Christmas gift wrap includes 2 designs. Each pack has 4 sheets of paper (2 of each design) and 8 sticker tags. Sheet size – 500x695mm

Five most common topics on our helpline

Our Helpline Officer Uschi gives us her current top five topics that keep her and her colleague busy on the helpline at the moment. No day is the same on the helpline. Themes and topics change all the time, or something brand new may pop up such as the emergence of a pandemic three years …

SHARE – The Scottish Health Research Register and Biobank

Former Moderator of the Church of Scotland named epilepsy ambassador

Epilepsy Scotland is delighted to announce that Dr Iain Greenshields has become an ambassador of the charity. A widely-respected public figure, Dr Greenshields is minister of St Margaret’s Community Church in Dunfermline and recently served as the Moderator of the General Assembly from 2022 to 2023, representing the Church of Scotland at the funeral of …

Epilepsy and SUDEP – Dianne’s story

Our Fundraising Manager, Gemma Fleet, talked to Dianne whose daughter Emma sadly passed away due to Sudden Unexplained Death In Epilepsy (SUDEP) in April 2023. Dianne shares her memories of Emma. Her life living with epilepsy and how she would like Emma to be remembered. We would like to thank Dianne for raising awareness, and …

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© Epilepsy Scotland 2025 – Epilepsy Scotland is a company limited by guarantee.
Registered in Scotland No. 163987. Scottish Charity No: SC000067.
Registered Address: 48 Govan Road Glasgow G51 1JL

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