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Brave Kate Shaves Head, Raises Over £400 for Epilepsy Scotland

Kate Willingale, a volunteer fundraiser, from Kinross, Perth, has taken clippers to her locks and raised an amazing £433.75 for Epilepsy Scotland. This wasn’t just another charity haircut for Kate, it was a deeply personal journey of courage and hope. For 27 years, Kate has been living with epilepsy and a brain tumour. Recently, Kate …

Medication Challenges: Dealing with Supply Issues

One of our social media followers shares their experiences of living with epilepsy and the struggle they have had sourcing anti-seizure medication. Can you tell us a bit of background on how you got diagnosed with epilepsy? Well, about a year ago, I just started feeling really not right for a while and I …

Kate’s Journey: Living with Epilepsy and a Brain Tumour

After living with epilepsy and a brain tumour for 27 years, Kate was given the opportunity to have the tumour surgically removed. For this to happen, Kate would need to have a small strip of hair shaved from her head, so she decided to get the whole lot shaved off to raise money for Epilepsy …

A mother’s struggle: Navigating epilepsy, autism, and medication shortages

Susan’s son Lewis was diagnosed with epilepsy when he was just five years old. She shares the impact seizures have on her son and how difficult it has been sourcing anti-seizure medication. Can you tell us a bit of background on how your son was diagnosed with epilepsy? Lewis took a tonic-clonic seizure at …

Anti-seizure medication shortage: Katharina’s story

Katharina’s daughter was diagnosed with epilepsy when she was 10 years old. She shares how epilepsy has impacted her daughter and the difficulties sourcing her daughter’s anti-seizure medication. Can you tell us a bit of background on how your daughter was diagnosed with epilepsy? She experienced her first seizure in December last year. We …

When your life implodes: Jacquie’s story

Jacquie shares her story of being diagnosed with epilepsy and how Epilepsy Scotland’s Check-In Service has helped her. “We all have some experience of ill health or loss, but there are few illnesses like epilepsy, which are so common yet so misunderstood, even by health care professionals. This is why I want to share my …

Living with epilepsy: Martin’s story

Martin was diagnosed with epilepsy when he was 19 years old. He shares his story and experiences of living with the condition and also having encephalitis, inflammation of the brain. How did you feel when you were first diagnosed with epilepsy? I don’t remember exactly how I initially thought about the diagnosis, I suppose …

Epilepsy Scotland appear on BBC Radio Scotland

Chair of Epilepsy Scotland trustees, Dr Susan Duncan and Epilepsy Scotland Chief Executive, Lesslie Young, appeared on BBC Radio Scotland this morning to discuss Oran who has severe epilepsy and has become the first patient in the world to trial a new device fitted in their skull to control seizures and the support available for …

Little Moments Matter film raises awareness of Dravet Syndrome

A new short film called ‘Little Moments Matter’ has been launched by Dravet Syndrome UK to mark Dravet Syndrome Awareness Day, 23rd June 2024. The film features three families caring for someone living with Dravet Syndrome including Laura, Alex and their son George, aged 2; Jen, Tom and their daughters Beth, aged 9 and her sister …

New Pregnancy Prevention Measures Introduced for Topiramate

Following a major safety review triggered by a new study conducted in Europe, the Medicines and Healthcare products Regulatory Agency (MHRA) is introducing new safety measures for topiramate, also known by the brand name Topamax. Following recommendations made in the review, the MHRA is now advising healthcare professionals that topiramate should not be prescribed to …

Epilepsy Scotland Respond To Cat Deeley Comment

Epilepsy Scotland would like to add to the bitter disappointment being directed at comments made by Cat Deeley on ITV’s This Morning on Monday 17th June. Epilepsy Scotland’s CEO, Lesslie Young, says “It is incredibly disappointing that once again a high-profile individual makes blatant fun of seizures on national TV. Seizures are no laughing …

Epilepsy Scotland Chief To Receive OBE

Announced in the Birthday Honours List 2024 Lesslie Young, CEO of Epilepsy Scotland, is to be conferred the honour of Officer of the Order of the British Empire by His Majesty the King for services to people with epilepsy in Scotland. Lesslie started at Epilepsy Scotland in 2006 hoping to put her experience of …

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