About me:
Nine years ago, a devastating combination of encephalitis and a traumatic brain injury changed my family’s life forever. Since then, I have lived with refractory tonic-clonic generalised seizures and faced the challenges of adjusting under an increasingly stretched NHS system.
Three years ago, I was introduced to Epilepsy Scotland’s Check-In Service at a very low point, unaware then that they would become my biggest supporters and a vital part of my journey to reclaim my life.
The Event:
On October 4th, my husband and I hosted our second Community Fundraiser for Epilepsy Scotland at our local pub, The Riverside Inn.
And what a day it was! To everyone who attended and to those who supported us from afar, thank you from the bottom of our hearts. Your energy, generosity, and pure love were truly overwhelming.
But this event was about more than just raising money. It was a powerful mission to foster understanding, acceptance, and open conversations about epilepsy — for all those who need to hear that they are not alone.
Our goal was simple yet impactful: Raise Funds whilst we Raise Awareness.
Thanks to the incredible efforts of everyone involved—from the youngest volunteer to the most generous bidder—we surpassed last year’s total, smashing through the £5,000 mark. Our final tally: £5,195.00.
Special praise goes to our inspiring guest, Safi, who defied the odds with her climb of Ben Nevis in July, raising a further £1,000.
While the financial achievement is remarkable, the true victory lies in the emotional strength displayed. The room was electric, packed beyond capacity—proof that our community can and will make a difference.
The Heart of the Day: Open Conversations, Breaking Stigma, and Building Bonds
If I could sum up the most meaningful moments in just one paragraph, it would be this: everyone openly talked about epilepsy, asked questions, and tore down the barriers of stigma that have long kept the condition in the shadows.
This gathering showcased the extraordinary power of community support, offering a safe, joyful, and inclusive space for families who often feel isolated.
The event reinforced the importance of connection—a cornerstone of Epilepsy Scotland’s daily work. My own friendship with Safi began through their services, blossoming through shared experiences in their online support groups. Our bond grew stronger through this fundraiser, united by a common purpose.
It was also wonderful to see Lucas, an 11-year-old recently diagnosed, accompanied by his supportive family. Despite recent struggles, Lucas and his family helped to organise the day, which touched us deeply. They, along with others like Marcus and his family—facing rare conditions and early-life seizures—were shining examples of resilience and hope.
I distributed handmade “Purple Parcels”—goody bags filled with jewellery and heartfelt messages, small tokens of warmth handcrafted by me, a tangible thank you to our community.
An Electric Atmosphere: The Day’s Highlights
The true magic was in the energy and enthusiasm that pulsed throughout the day, from 2 pm until midnight. The venue was buzzing with activity and purpose, driven by a community eager to stand together.
Our auction was a spectacular highlight, featuring rare and coveted items generously donated by supporters:
– A hospitality package at Ibrox Stadium
– A signed Kilmarnock jersey
– A Scotland football boot signed by Denis Law
– A signed photo from Tony Hawks
– A cast photo from Still Game
– A signed picture of Graeme Souness
– A Jo Malone diffuser with goodies
– Rare whiskeys, and more!
The raffle was equally impressive, overflowing with prizes from local businesses and individuals united in support. Cash donations from far and wide from those unable to attend boosted our figure and were equally appreciated.
Every ticket sold translated directly into advocacy, research, and support for families across Scotland.
The atmosphere was lightened with fun competitions, including a pool contest with a generous £100 prize donated by Tom’s friend, and further donations from Tom himself.
This collective effort proved that we’re building something truly meaningful—something with lasting impact.
The Ripple Effect: Inspiring Action and Momentum
The funds raised not only reflect our efforts but signal that this movement is gaining momentum.
Epilepsy Scotland staff will soon present a formal cheque at the village, acknowledging and celebrating our community’s incredible work.
More inspiring still is the ripple effect: the conversation about epilepsy started within the event continued beyond it. For example, Tom’s former RAF friend’s daughter, who is training to be a police officer, was so moved by the day that she chose Epilepsy Scotland for her upcoming 10K run. Small actions, big impacts.
One event has sparked a new wave of commitment. We’ve already started preparing for next year — collecting T-shirts and balloons — because our journey is just beginning.
A Future of Hope and Understanding
Our deepest thanks go to everyone who attended, donated, volunteered, or shared their stories. Special gratitude to the pub owner, generous donors, and brave families like Safi’s, Lucas’s and Marcus’s.
The funds we raised will directly support Epilepsy Scotland’s vital work to:
– Fight stigma in workplaces and society
– Fund free support services, helplines, and wellbeing programs
– Campaign for policy changes to improve access to care
Together, we proved that when our community unites, we are powerful.
We can be loud, passionate, and effective — raising not just funds, but hope, awareness, and enduring change.
