We regularly need the help of people with epilepsy to inform our policy work. We have an engagement group who help us understand how people with epilepsy currently live and what they need to live well on their own terms. They do this answering the odd questionnaire or email from time to time. We use this information to act on your behalf and make sure that people with epilepsy are properly represented. Sound like something you could be interested in? Email firstname.lastname@example.org for more information on how you can join our amazing team!
Previous engagement has allowed us to better respond to government consultations and paint a better picture to decision makers of what it is like to live with epilepsy.