Policy blog

Welcome to Epilepsy Scotland’s Policy Blog run by Policy and Campaigns Officer, Rona Johnson. The aim of this blog is to try and translate policy jargon to give a better idea of how current policy will affect people with epilepsy. If you have any questions or would like to find out more about a specific topic please email Rona at rjohnson@epilepsyscotland.org.uk

Updated impact of COVID-19 on epilepsy

  Our Policy and Campaigns Officer, Rona Johnson, provides an update on our impact of COVID-19 and Epilepsy report and the results of our most recent survey.

Programme for Government

Programme for Government 2020-2021

  Our Policy and Campaigns Officer, Rona Johnson looks at the recently published Programme for Government 2020-2021 and some key aspects that Epilepsy Scotland are particularly interested in.


COVID19: returning to work safely

  Our Policy and Campaigns Officer, Rona Johnson provides information published by The Scottish Government for workers and employers returning to work during the COVID19 pandemic.

COVID19 report

Epilepsy and COVID19 report

  Our Policy & Campaigns Officer, Rona Johnson provides results to our survey looking at how COVID19 has impacted people with epilepsy.


Neurological Care and Support in Scotland

  In 2019, the Scottish Government consulted on Scotland’s first Neurological Action Plan. Several organisations and individuals, including Epilepsy Scotland, contributed to the consultation. This was done to ensure that any commitments made addressed issues that people with neurological conditions face.


Epilepsy and methadone

  The last policy blog post focussed on a new epilepsy register. It is currently being piloted in NHS Greater Glasgow and Clyde and NHS Tayside. Epilepsy Scotland is very supportive of this register. We believe it will improve knowledge about epilepsy and drive better standards of care.


Brexit update – Supply of medicines

  Epilepsy Scotland, along with several other charities, met with the Scottish Government’s Principal Pharmaceutical Officer and Head of Medicines Policy earlier this year. This was to discuss the continued supply of medicines in the event of a no-deal Brexit.

National Conference

Epilepsy Scotland’s National Conference

  Following the success of our last conference in Edinburgh, we have decided to host an event in Glasgow, Saturday 2 November. The conference will focus on individualised methods to treating and managing epilepsy.

Buccal Midazolam

New guidelines for Buccal Midazolam

  The Epilepsy Nurses Association (ESNA) has launched new best practice training guidelines for the administration of Buccal Midazolam for epilepsy patients.

Mental health for children living with epilepsy

  Last week, we discussed the problem of mental health in children who have epilepsy. We noted the significantly higher rates of mental health problems in children with epilepsy and how it is currently under diagnosed and not recognised. NHS Lothian has developed and piloted an effective screening method.

Mental Health

The Scottish Budget – Mental Health

  In December 2018, the Scottish Budget was announced. This decided Scottish Government spending for 2019/2020. We noticed that in the budget mental health received a significant amount of attention – something which we fully support.

Neurological Action Plan

First Neurological Action Plan developed

  The Scottish Government have developed the first Neurological Action Plan. This is a significant step forward in improving how people with neurological conditions are cared for. Also, after consulting people with neurological conditions, clinicians and third sector organisations, the Government came up with five aims and seventeen commitments.


Brexit – Medication Update

Epilepsy Scotland, along with several other charities, met with the Scottish Government’s Head of Medicine Policy and Principal Pharmaceutical Officer to go over plans to ensure the supply of medications in the event of a no deal Brexit.