Epilepsy

What it’s like to live with epilepsy

  Nyaka Mwanza is a freelance writer for MyHealthTeams. Here she shares her story of being diagnosed with epilepsy and what it is like to live with the condition.


Scottish Child Payment

Scottish Child Payment open for applications

  Our Interim Policy and External Affairs Manager, Rona Johnson looks at the new Scottish Child Payment benefit, which was developed to help some families meet the costs of raising a family.


Equality Act

Epilepsy, work and the Equality Act

  Our Helpline & Information Officer, Stuart Macgee provides information on the Equality Act and how it helps people with epilepsy have a fairer and better chance to be interviewed and offered a job.


Epilepsy

Being diagnosed with epilepsy while at high school

  Chloe was diagnosed with epilepsy eight years ago while she was at high school. Here she describes how epilepsy has affected her and what she would say to someone who has been recently diagnosed.  


Epilepsy

Being diagnosed with epilepsy whilst at university

  Megan has been living with epilepsy for three years and was diagnosed whilst studying at university. Here Megan shares the challenges she has faced and how epilepsy has affected her.  


Invisible Disabilities

It’s time to learn more about invisible disabilities

  Epilepsy is predominantly an invisible condition. This can bring additional challenges to those living with it. Our Chief Executive, Lesslie Young, explains why awareness weeks like Invisible Disabilities Week are needed more than ever.


Ben Nevis

Fundraiser focus: My Ben Nevis challenge

  Murray is climbing Ben Nevis in March 2021 to help raise vital funds for Epilepsy Scotland. This extreme challenge is set over an entire weekend. Murray explains what this challenge means to him.


Children

Our children are dying unnecessarily. Why?

  Our Chief Executive, Lesslie Young looks at research conducted by the Scottish Learning Disability Observatory (SLDO) which focussed on research into deaths of children with learning disabilities living in Scotland.


Anxiety

Ways to help deal with and reduce anxiety

  Our Helpline & Information Officer, Stuart Macgee provides information on ways to help deal with and reduce anxiety, especially during this uncertain time.


Updated impact of COVID-19 on epilepsy

  Our Policy and Campaigns Officer, Rona Johnson, provides an update on our impact of COVID-19 and Epilepsy report and the results of our most recent survey.


Cycling

Living with epilepsy: How cycling has helped me

  Leanne was diagnosed with epilepsy when she was 18 years old. Here Leanne shares her story of living with epilepsy and how cycling has helped her have some independence.


Epilepsy Scotland

Why I joined Epilepsy Scotland as a trustee

  Vice-chair of Epilepsy Scotland’s board of directors, Kirsty Lynch, explains why she joined Epilepsy Scotland as a trustee and the challenges faced during the COVID-19 pandemic.


Book review: Seizures and Epilepsy in Childhood: A Guide

  Our Wellbeing Assistant, Jennifer Bell recently read a book called Seizures and Epilepsy in Childhood: A Guide by John M. Freeman M.D., Eileen P.G. Vining M.D. and Diana J. Pillas. She provides her thoughts on the book and how it can help parents and patients understand their condition better and accept it.


Learning disabled

Covid, common sense and compassion

  Our Chief Executive, Lesslie Young, looks at the new Covid-19 restrictions. Also, how people with a learning disability, who are living and being cared for in supported accommodation have been largely forgotten during the pandemic.


Sleep seizures

Sleep seizures explained

  Our Helpline & Information Officer, Stuart Macgee provides information on how to detect sleep seizures.


Programme for Government

Programme for Government 2020-2021

  Our Policy and Campaigns Officer, Rona Johnson looks at the recently published Programme for Government 2020-2021 and some key aspects that Epilepsy Scotland are particularly interested in.


Epilepsy

Living with epilepsy for nine years

  Maggie was diagnosed with epilepsy when she was just nine years old and has been living with epilepsy for nine years. Here she shares her experiences and what she would say to someone who has been recently diagnosed.


Invisible Disabilities

Status epilepticus and emergency medication

  Our Training Manager, Nicola Milne looks at status epilepticus, when a seizure becomes a medical emergency and provides information on what is emergency medication.


Fundraising

Returning to work as a Community and Events Fundraiser

  We are delighted to welcome back our Community and Events Fundraiser, Kerry Reich from maternity leave and furlough. Kerry shares her experiences of the last 19 months and the changing times in fundraising.


Social care

Appreciation vs Value vs Worth

  Our Chief Executive, Lesslie Young, looks at the “Show You Care” report which shows that Scotland’s social care is on a cliff edge.


Work

COVID19: returning to work safely

  Our Policy and Campaigns Officer, Rona Johnson provides information published by The Scottish Government for workers and employers returning to work during the COVID19 pandemic.


Epilepsy and driving

Epilepsy and driving: Legal requirements

  Our Helpline & Information Officer, Stuart Macgee looks at epilepsy and driving and what legal requirements need to be met before being able to drive again.


Epilepsy Warriors Foundation and Epilepsy Scotland

Lesslie Young, Chief Executive   With COVID-19 changing the way we live in so many ways we need to focus on the positives. Epilepsy Scotland has seen an increase in people participating in our services since we moved to virtual delivery. Some people are more comfortable taking part from the comfort of their own home … Continued


Epilepsy

Having epilepsy whilst working and studying for a MBA

  Graham Loan was diagnosed with epilepsy in 2017. However, his diagnosis hasn’t stopped him from forging a successful career and has provided him with different opportunities at work which has allowed him to learn new skills and has led to a recent promotion. Here he shares his story.


School

Returning to school with a diagnosis of epilepsy

  Our Chief Executive, Lesslie Young looks at children and young people returning to school with a diagnosis of epilepsy and how well a teacher understands the condition can make an enormous difference to their return to school experience.


Social prescribing

How social prescribing helps people with epilepsy

  Our Chief Executive, Lesslie Young provides information on the concept of social prescribing, which seeks to address people’s individual needs including areas such as mental health and social support.  


Invisible Disabilities

First aid for more complicated epilepsy

  In the final part of our first aid for seizures blog series, our Helpline and Information Officer Stuart Macgee looks at first aid for more complicated epilepsy.


Q&A with Jason Leitch

Q&A with Professor Jason Leitch

  Epilepsy Scotland Chief Executive, Lesslie Young asked your questions regarding epilepsy and coronavirus to Professor Jason Leitch, National Clinical Director for Scotland.


Sodium Valproate

Sodium Valproate – a time for action not words

  Our Chief Executive, Lesslie Young looks at The Cumberledge Review into the avoidable harm to women through the use of Primodos, pelvic mesh and Sodium Valproate and whether an apology from the government is enough.