Pommel horse

Ryan’s Pommell Horse Challenge

  A big thank you to Ryan who has raised almost £2,000 for Epilepsy Scotland by attempting to complete 5,000 circles over his pommel horse in just one week! Here he shares why he is taking on this challenge.


Focal aware seizures

Seizures explained: Focal seizures

  Over the next few weeks, we will be looking at the different types of seizures. In this first part, our Helpline and Information Officer, Stuart Macgee looks at seizures which only affect one part of the brain. These are known as focal seizures, also known as partial seizures.


epilepsy

My story of living with epilepsy

  Ryan was diagnosed with epilepsy 20 years ago aged just 12. Here he shares his experiences of growing up with epilepsy, challenges he has faced and what advice he would give to someone newly diagnosed.


ESN

2021 Election Campaign – More Epilepsy Specialist Nurses

  For the sixth Scottish Parliament election, we decided to make six asks of the next Scottish Government and group of MSPs elected. Our Policy Assistant, Anna Telfer, provides information on our second election ask, which is to ensure there is at least one adult and one paediatric Epilepsy Specialist Nurse in each health board.


benefits

2021 Election Campaign – Invisible condition training for benefit assessors

  For the sixth Scottish Parliament election, we decided to make six asks of the next Scottish Government and group of MSPs elected. Our Interim Policy and Communications Manager, Rona Johnson, provides information on our third election ask, which is to ask new disability benefits assessors to be specifically trained to understand fluctuating conditions like epilepsy.


Neurophysiology

2021 Election Campaign – Support Neurophysiology in Scotland

  As this is the sixth Scottish Parliament election, we decided to make six asks of the next Scottish Government and group of MSPs elected. Our Interim Policy and Communications Manager, Rona Johnson provides information on our fifth election ask, which is support neurophysiology in Scotland.


Epilepsy

Growing up whilst living with epilepsy

  Elle began having seizures during her childhood. Here she shares her experiences and how she wants to encourage people to not feel ashamed of having epilepsy.


Disability

The irreversible damage of decades of inaction

  Our Chief Executive, Lesslie Young looks at how the impact of the pandemic on children and young adults who live with disadvantage and disability every day may be irreparable.


Mental health

Children, epilepsy and mental health

  On Children’s Mental Health Week, our Helpline and Information Officer, Stuart Macgee looks at identifying depression in children and young people and the possible causes.


Support

Supporting you during COVID-19 pandemic

  It is normal to feel anxious, sad or depressed during these difficult times. However, there is support out there to help you get through it. Our Wellbeing Manager, Vicki Burns provides information on how we can support you.


2021 Election Campaign – Funded PhDs in epilepsy

  Last week, we were delighted to launch our 2021 Scottish Parliament Manifesto. As this is the sixth Scottish Parliament election, we decided to make six asks of the next Scottish Government and group of MSPs elected. Our Policy Assistant, Anna Telfer provides information on our sixth election ask, which is funded PhDs in epilepsy.


100 mile challenge

Why I am doing the 100 Mile Challenge

  Our 100 Mile Challenge is off to a great start with lots of our supporters signing up. We had a chat with Rihannon who explained what this challenge means to her.


Social care

A Christmas Carol. Fiction, fact, or a morality lesson?

  As we head towards the end of 2020, our Chief Executive, Lesslie Young, looks at how the year has been a stark reminder of how we have treated and continue to the treat the vulnerable in our society and the experience it has given us to shape the future of social care.


Helpline

Working on the helpline during COVID-19

  Our Helpline and Information Officer, Uschi Stickroth, looks at the trials and tribulations, and sometimes funny side, of providing a helpline and information service working from home.


Epilepsy

What it’s like to live with epilepsy

  Nyaka Mwanza is a freelance writer for MyEpilepsyTeam. Here she shares her story of being diagnosed with epilepsy and what it is like to live with the condition.


Scottish Child Payment

Scottish Child Payment open for applications

  Our Interim Policy and External Affairs Manager, Rona Johnson looks at the new Scottish Child Payment benefit, which was developed to help some families meet the costs of raising a family.


Equality Act

Epilepsy, work and the Equality Act

  Our Helpline & Information Officer, Stuart Macgee provides information on the Equality Act and how it helps people with epilepsy have a fairer and better chance to be interviewed and offered a job.


Epilepsy

Being diagnosed with epilepsy while at high school

  Chloe was diagnosed with epilepsy eight years ago while she was at high school. Here she describes how epilepsy has affected her and what she would say to someone who has been recently diagnosed.  


Epilepsy

Being diagnosed with epilepsy whilst at university

  Megan has been living with epilepsy for three years and was diagnosed whilst studying at university. Here Megan shares the challenges she has faced and how epilepsy has affected her.  


Invisible Disabilities

It’s time to learn more about invisible disabilities

  Epilepsy is predominantly an invisible condition. This can bring additional challenges to those living with it. Our Chief Executive, Lesslie Young, explains why awareness weeks like Invisible Disabilities Week are needed more than ever.


Ben Nevis

Fundraiser focus: My Ben Nevis challenge

  Murray is climbing Ben Nevis in March 2021 to help raise vital funds for Epilepsy Scotland. This extreme challenge is set over an entire weekend. Murray explains what this challenge means to him.


Children

Our children are dying unnecessarily. Why?

  Our Chief Executive, Lesslie Young looks at research conducted by the Scottish Learning Disability Observatory (SLDO) which focussed on research into deaths of children with learning disabilities living in Scotland.


Anxiety

Ways to help deal with and reduce anxiety

  Our Helpline & Information Officer, Stuart Macgee provides information on ways to help deal with and reduce anxiety, especially during this uncertain time.


Updated impact of COVID-19 on epilepsy

  Our Policy and Campaigns Officer, Rona Johnson, provides an update on our impact of COVID-19 and Epilepsy report and the results of our most recent survey.


Cycling

Living with epilepsy: How cycling has helped me

  Leanne was diagnosed with epilepsy when she was 18 years old. Here Leanne shares her story of living with epilepsy and how cycling has helped her have some independence.


Epilepsy Scotland

Why I joined Epilepsy Scotland as a trustee

  Vice-chair of Epilepsy Scotland’s board of directors, Kirsty Lynch, explains why she joined Epilepsy Scotland as a trustee and the challenges faced during the COVID-19 pandemic.


Book review: Seizures and Epilepsy in Childhood: A Guide

  Our Wellbeing Assistant, Jennifer Bell recently read a book called Seizures and Epilepsy in Childhood: A Guide by John M. Freeman M.D., Eileen P.G. Vining M.D. and Diana J. Pillas. She provides her thoughts on the book and how it can help parents and patients understand their condition better and accept it.