ESN

2021 Election Campaign – More Epilepsy Specialist Nurses

  For the sixth Scottish Parliament election, we decided to make six asks of the next Scottish Government and group of MSPs elected. Our Policy Assistant, Anna Telfer, provides information on our second election ask, which is to ensure there is at least one adult and one paediatric Epilepsy Specialist Nurse in each health board.


Learning disabilities

COVID-19 spotlights a need for change

  Our Chief Executive, Lesslie Young, looks at how the lessons learned from the COVID-19 pandemic must be used to address the inequalities faced by people with learning disabilities.


benefits

2021 Election Campaign – Invisible condition training for benefit assessors

  For the sixth Scottish Parliament election, we decided to make six asks of the next Scottish Government and group of MSPs elected. Our Interim Policy and Communications Manager, Rona Johnson, provides information on our third election ask, which is to ask new disability benefits assessors to be specifically trained to understand fluctuating conditions like epilepsy.


Disability

The irreversible damage of decades of inaction

  Our Chief Executive, Lesslie Young looks at how the impact of the pandemic on children and young adults who live with disadvantage and disability every day may be irreparable.


2021 Election Campaign – Funded PhDs in epilepsy

  Last week, we were delighted to launch our 2021 Scottish Parliament Manifesto. As this is the sixth Scottish Parliament election, we decided to make six asks of the next Scottish Government and group of MSPs elected. Our Policy Assistant, Anna Telfer provides information on our sixth election ask, which is funded PhDs in epilepsy.


Social care

A Christmas Carol. Fiction, fact, or a morality lesson?

  As we head towards the end of 2020, our Chief Executive, Lesslie Young, looks at how the year has been a stark reminder of how we have treated and continue to the treat the vulnerable in our society and the experience it has given us to shape the future of social care.


Invisible Disabilities

It’s time to learn more about invisible disabilities

  Epilepsy is predominantly an invisible condition. This can bring additional challenges to those living with it. Our Chief Executive, Lesslie Young, explains why awareness weeks like Invisible Disabilities Week are needed more than ever.


Children

Our children are dying unnecessarily. Why?

  Our Chief Executive, Lesslie Young looks at research conducted by the Scottish Learning Disability Observatory (SLDO) which focussed on research into deaths of children with learning disabilities living in Scotland.


Updated impact of COVID-19 on epilepsy

  Our Policy and Campaigns Officer, Rona Johnson, provides an update on our impact of COVID-19 and Epilepsy report and the results of our most recent survey.


Epilepsy Scotland

Why I joined Epilepsy Scotland as a trustee

  Vice-chair of Epilepsy Scotland’s board of directors, Kirsty Lynch, explains why she joined Epilepsy Scotland as a trustee and the challenges faced during the COVID-19 pandemic.


Learning disabled

Covid, common sense and compassion

  Our Chief Executive, Lesslie Young, looks at the new Covid-19 restrictions. Also, how people with a learning disability, who are living and being cared for in supported accommodation have been largely forgotten during the pandemic.


Invisible Disabilities

Status epilepticus and emergency medication

  Our Training Manager, Nicola Milne looks at status epilepticus, when a seizure becomes a medical emergency and provides information on what is emergency medication.


Fundraising

Returning to work as a Community and Events Fundraiser

  We are delighted to welcome back our Community and Events Fundraiser, Kerry Reich from maternity leave and furlough. Kerry shares her experiences of the last 19 months and the changing times in fundraising.


Social care

Appreciation vs Value vs Worth

  Our Chief Executive, Lesslie Young, looks at the “Show You Care” report which shows that Scotland’s social care is on a cliff edge.


Work

COVID19: returning to work safely

  Our Policy and Campaigns Officer, Rona Johnson provides information published by The Scottish Government for workers and employers returning to work during the COVID19 pandemic.


Epilepsy and driving

Epilepsy and driving: Legal requirements

  Our Helpline & Information Officer, Stuart Macgee looks at epilepsy and driving and what legal requirements need to be met before being able to drive again.


School

Returning to school with a diagnosis of epilepsy

  Our Chief Executive, Lesslie Young looks at children and young people returning to school with a diagnosis of epilepsy and how well a teacher understands the condition can make an enormous difference to their return to school experience.


Social prescribing

How social prescribing helps people with epilepsy

  Our Chief Executive, Lesslie Young provides information on the concept of social prescribing, which seeks to address people’s individual needs including areas such as mental health and social support.  


Invisible Disabilities

First aid for more complicated epilepsy

  In the final part of our first aid for seizures blog series, our Helpline and Information Officer Stuart Macgee looks at first aid for more complicated epilepsy.


Q&A with Jason Leitch

Q&A with Professor Jason Leitch

  Epilepsy Scotland Chief Executive, Lesslie Young asked your questions regarding epilepsy and coronavirus to Professor Jason Leitch, National Clinical Director for Scotland.


Sodium Valproate

Sodium Valproate – a time for action not words

  Our Chief Executive, Lesslie Young looks at The Cumberledge Review into the avoidable harm to women through the use of Primodos, pelvic mesh and Sodium Valproate and whether an apology from the government is enough.


Lesslie Young

Update from Epilepsy Scotland CEO, Lesslie Young

  Our Chief Executive Lesslie Young looks at the dedication and selflessness of those working in the care sector and how caring for people is at the heart of Epilepsy Scotland.


Work

Employment – a consistent barrier for people with epilepsy

  Our Chief Executive, Lesslie Young looks at how gaining employment is a consistent barrier for people living with epilepsy and how Epilepsy Scotland will continue to do everything we can to ensure people with epilepsy are never held back by their condition when trying to reach their full potential.


First aid

First aid for tonic-clonic and absence seizures

  Our Helpline & Information Officer, Stuart Macgee will be looking at first aid for seizures as part of a new blog series. Part one looks at first aid for tonic-clonic and absence seizures.


Volunteers

Thank you to our amazing volunteers

  Our Chief Executive, Lesslie Young highlights the importance of our amazing volunteers who make a huge difference in so many areas of Epilepsy Scotland’s work.


Volunteer

Why I volunteer for Epilepsy Scotland

  This week is Volunteers Week and we are sharing some stories of people who volunteer for Epilepsy Scotland. Today board member Ross Bennet shares how he became involved with Epilepsy Scotland and what he has gained from volunteering.