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Gathering information about epilepsy

Epilepsy Scotland is currently involved in a number of pieces of research regarding epilepsy. Conducting research gives us a better evidence base for delivering services and providing the right information for people with epilepsy. It also helps our campaigning and policy work. If you would like to know more about any of these projects, or have suggestions for further research, please get in touch on 0141 427 4911.

Patient experiences of epilepsy surgery

Scotland now has a Managed Service Network (MSN) for Neurosurgery. Part of the work of the MSN is to help develop a networked approach to epilepsy surgery around the country. To help with this work, Epilepsy Scotland is conducting a piece of research into the views of the current service from people who have had epilepsy surgery. The aim is to better understand the needs of people having epilepsy surgery, and help make sure these are taken into account when developing a networked service.

Sudden Unexpected Death in Epilepsy (SUDEP)

There is currently no guidance on how information on SUDEP should be provided to people with epilepsy, who should provide the information and at what point the information should be given. Epilepsy Scotland is currently planning some research to identify the views of people with epilepsy and their carers on the provision of information regarding SUDEP. The project is still in its initial stages.