Podcasts and DVDs
Lesslie Young on BBC Radio Scotland
Lesslie Young on BBC Radio Scotland talking about new epilepsy drug Perampanel
Epilepsy is much more than seizures
Westminster debate on prevention of avoidable deaths from epilepsy
There was a Westminster debate
on the prevention of avoidable deaths from epilepsy. This was a Private Members Debate, brought by Steve McCabe on Tuesday 29th November 2011.
BBC Scotland focus on epilepsy
BBC Scotland and BBC Radio Scotland have been looking at epilepsy statistics and services. Listen to BBC Radio Scotland Investigates The TV footage will hopefully be coming soon.
Epilepsy and Occupational Health Scottish Parliament reception (2011)
When Epilepsy Scotland launched the UK’s first occupational health guide to epilepsy, several speakers at our Holyrood reception commented how this new resource will help employers. The unique guide was compiled by Epilepsy Scotland and occupational health professionals from the voluntary, public and private sector. View all the speeches and speakers on You Tube.
- Dr Alasdair Allan MSP, Co-convener Cross-Party Group on Epilepsy (video pdf
) - Lesslie Young, Epilepsy Scotland Chief Executive (video pdf )
- Dr Frederick Westbrook, Serco Consultant Occupational Physician (video pdf )
- Ross Bennet, Fife Constabulary Chief Inspector (video pdf )
- Hilary Todd, Society of Occupational Medicine Chief Executive (video pdf )
- Nicola Sturgeon, Cabinet Secretary for Health and Wellbeing (video pdf )
- Professor Ian Bone, Epilepsy Scotland Board member (video pdf )
National Epilepsy Week Scottish Parliament reception (2010)
Three young women shared their experiences of epilepsy with MSPs at our Scottish Parliament reception. Held during National Epilepsy Week, the successful event raised awareness of issues affecting the under 25s. Guests, including Public Health Minister Shona Robison and our patron Baroness Veronica Linklater, heard from Rosie Gilmour, Stephanie Henderson and Loreen Smith. View all the speeches and the speakers on You Tube.
- Shona Robison MSP, Public Health Minister (video pdf )
- Lesslie Young, Epilepsy Scotland Chief Executive (video pdf )
- Rosie Gilmour, Epilepsy Scotland Young Ambassador (video pdf )
- Stephanie Henderson with Zoe Reid, Epilepsy Scotland Youth Group (video pdf )
- Lorraine Smith, Fife Epilepsy Support Group (video pdf )
Recent Podcasts
Mikey Hughes Launches Braille Epilepsy helpline card
Big Brother runner up and Insight Radio presenter Mikey Hughes has launched our new Braille helpline card. RNIB Scotland and Sense Scotland are among several organisations making this card available to blind and partially sighted people across the country. The new format makes vital information about epilepsy accessible to thousands of people registered with sight problems in Scotland.
Listen to Insight Radio Presenter Mikey Hughes interview with Epilepsy Scotland's Lesslie Young:
Listen to Insight Radio Presenter Mikey Hughes interview with Epilepsy Scotland's Craig Blair:
Lesslie Young On Radio
Canadian researchers have watched several American hospital soaps to check if people are treated appropriately according to guidelines. In almost half the cases involving epilepsy, the wrong things were done.
Listen to Chief Executive Lesslie Young’s interview on this topic on BBC Radio Scotland’s Newsdrive programme:
National Epilepsy Week Advert
For a second year, Cuillin fm has prepared a National Epilepsy Week advert for Scottish community radio stations. The advert is available in English and Gaelic. Presenter Barbara Mackenzie convinced Dan Ogden, Junior Sync Manager with Warner Chappell Music Limited and his colleague Dale Cornish, Licensing Executive with Warner Music UK to grant permission for Paolo Nutini's 'Simple Things' to be used as a free backing track. Fellow presenter Denis Blackham mastered the advert while teenage presenters Ruairidh Cormack and John Gillies recorded the script. Arthur and Shona Cormack helped translate the script for the Gaelic advert.
Listen to the advertisement in Gaelic:
Listen to the advertisement in English:
New drug approved to treat childhood epilepsy
A new drug Inovelon (rufinamide) made by Eisai Europe Limited has been licensed. It will be used to help children with Lennox-Gastaut Syndrome. Lennox-Gastaut Syndrome is a severe form of epilepsy. It is difficult to treat and can develop between the ages of two and six. Children who are affected by this uncommon syndrome often have “drop attack” (atonic) seizures. These can have severe consequences. This can mean children who are affected by Lennox-Gastaut Syndrome live with severe seizures and injuries caused by drop attacks.
Listen to the radio interview with Susan Dougals-Scott on this topic:
DVDs
Taking the tablets?
This is a DVD programme for people with epilepsy about anti-epileptic drug treatment, with views and experiences of people with epilepsy (including three people from Scotland) and two medical professionals. You can also view this DVD on YouTube.
Epileptic seizures
National Society for Epilepsy video (36 minutes) contains footage of real life seizures and discusses appropriate first aid
Reasons to be Cheerful
Information film for children
Rectal Diazepam
For use in conjunction with emergency medication training
How to give Buccal Midazolam
For use in conjunction with emergency medication training
Cost
DVDs are free to borrow. Please call 0808 800 2200 to arrange your loan
