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Sudep research

Sudep research

Added: 8 May 2015, 15:54

Epilepsy Scotland congratulated for SUDEP research

Epilepsy Scotland has collaborated with the Scottish Government to bring to light the thoughts of young people with epilepsy on SUDEP (Sudden and Unexpected Death in Epilepsy).  It has emerged that most young adults with a diagnosis want to know about the risks of  SUDEP and want to know early.  Yet even learning about risk factors SUDEP may not lead young patients to take their medication regularly.  Finding ways to increase patient understanding of SUDEP and their risk status are key recommendations in this landmark study by Epilepsy Scotland, in partnership with NHS Lothian, and The University of Edinburgh.

Jamie Hepburn, Minister for Sport, Health Improvement and Mental Health, said:
“We want to ensure that everyone living with a neurological condition, such as epilepsy is able to access the best possible care and support that they need right from the start – this includes access to information about their condition.

“I would like to congratulate Epilepsy Scotland on their collaborative approach on carrying out this important research.  This research was commissioned by Scottish Government following a Fatal Accident Inquiry report into the tragic deaths of two teenage girls in Fife. The report generated 11 wide ranging recommendations including a reiteration that most people diagnosed with epilepsy be informed of sudden and unexpected death in epilepsy.  I look forward to working with Epilepsy Scotland in the future.

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