External web links
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There are many more organisations and agencies who can provide advice, support and information on epilepsy and related issues. These include:
Quarriers
Quarriers are a charity who offer practical support and care for children, adults and families in Scotland. Their services include the Scottish Epilepsy Centre, Epilepsy Fieldwork Services and long-term residential services. For more information, visit their website quarriers.org.uk or telephone 01505 612224 or 616000
Quarriers' Scottish Epilepsy Centre
scottishepilepsycentre.org.uk provides specialist residential assessments, treatment and care for adults with severe and complex epilepsy. The centre is the only one of its kind in Scotland. People are assessed on an individual basis according to their specific needs. Tests include EEG and video telemetry. If you would like to find out more about this service contact Email: scottishepilepsycentre@quarriers.org.uk, Tel: 01505 616066, Web: scottishepilepsycentre.org.uk
Quarriers' Epilepsy Fieldwork Service promotes the welfare and wellbeing of people with epilepsy by offering information and support throughout Scotland. The service works in partnership with families, healthcare professionals and the community to increase awareness and understanding of epilepsy. For more information on this service, please contact the service co-ordinator, Lynnette Oldman: Email: lynnette.oldman@quarriers.org.uk, Tel: 01224 566385
Here are further web links to epilepsy organisations who may be able to help:
www.epilepsyclassroom.com
Created for parents and teachers to help provide advice, insight and tools that can help make handling epilepsy just another part of the school day.
www.epilepsy.cc
Centre for epilepsy and seizure education in British Columbia, Canada. Excellent videos and a lot of information about epilepsy.
www.jointepilepsycouncil.org.uk
Joint Epilepsy Council
www.epilepsyconnections.org.uk
Epilepsy Connections (cover Greater Glasgow & Clyde and Forth Valley Health Board areas)
www.epilepsywestlothian.co.uk
Epilepsy West Lothian (Support and advice to people with epilepsy in West Lothian)
www.scottishepilepsy.org
Scottish Epilepsy Initiative (research, education and training)
www.epilepsymcn.scot.nhs.uk
NHS Scotland Managed Clinical Network for Epilepsy
www.muirmaxwelltrust.com
Muir Maxwell Trust (Scottish paediatric epilepsy charity, support and free epilepsy alarms for children)
www.epilepsy.org.uk
Epilepsy Action (UK-wide epilepsy charity)
www.epilepsysociety.org.uk
The National Society for Epilepsy
www.epilepsy.com
American epilepsy website, packed full of useful epilepsy information
www.ilae.org
International League against Epilepsy
www.ibe-epilepsy.org
International Bureau for Epilepsy
www.epilepsy.ie
Brainwave - Irish Epilepsy Association
www.epilepsy-wales.org.uk
Epilepsy Wales
www.quarriers.org.uk
Quarriers (charity providing a range of services in Scotland. They work for a wide range of client groups including people with epilepsy)
www.epilepsyandpregnancy.co.uk
UK Pregnancy and Epilepsy Register - Freephone, information and research for pregnant women with epilepsy
www.matthewsfriends.org
Matthews Friends - useful information on Ketogenic Diet for children with epilepsy
www.epilepsyresearch.org.uk
Epilepsy Research UK
www.sudep.org
Epilepsy Bereaved: Information and support for anyone affected by SUDEP (Sudden Unexpected Death in Epilepsy)
www.ncype.org.uk
National Centre for Young People with Epilepsy (national charity for children and young people aged 5 to 25 with epilepsy and other neurological conditions)
www.davidlewis.org.uk
The David Lewis Centre - (largest UK provider of a range of medical, educational, residential and assessment services for people with complex epilepsy and other neurological conditions, including learning disability and challenging behaviour)
www.infantile-spasms.org Information on Infantile Spasms / West Syndrome, written by a parent of a child with the condition.
www.oacs-uk.co.uk
Organisation for Anti-Convulsant Syndromes (support group for those affected by Fetal Anti-Convulsant Syndrome (FACS))
www.netbuddy.org.uk/get-tip/health/epilepsy-and-safety/ handy tips from parents on epilepsy and safety
Other health conditions links:
www.nonepilepticattacks.info
Information about non-epileptic attacks and non-epileptic attack disorder
www.undiagnosed.org.uk
SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions
www.headway.org.uk
Headway - supporting people with a brain injury and those who care for them
www.braintumouruk.org.uk
Leading UK charity providing information on brain tumours
www.alzscot.org
Alzheimer Scotland - includes 24 hour freephone dementia helpline
www.meningitis-trust.org
This charity provides professional services and support to everyone whose lives have been affected by meningitis for as long as they need it and raising awareness of the disease.
www.meningitis.org
Meningitis Research Foundation
www.chss.org.uk
Chest, Heart & Stroke Scotland (includes advice line)
www.nas.org.uk
National Autistic Society
www.depressionalliance.org
Depression Alliance
www.mentalhealth.org.uk
Mental Health Foundation
www.samh.org.uk
Scottish Association for Mental Health – Scotland’s leading mental health charity
www.migraine.org.uk
Migraine Action
General health links:
www.youthhealthtalk.org
Interactive website about young people's experiences of different health issues, including epilepsy
www.scotlandpatients.com
Scotland Patients Association - Campaigning group for Scotland's patients
www.vhscotland.org.uk
Scottish Voluntary Sector Health Network website
www.show.scot.nhs.uk
Scotland's Health on the Web (NHS Scotland website)
www.healthscotland.com
Scotland's health improvement agency website
www.nhsinform.co.uk
NHS Scotland’s national health information service
www.isdscotland.org
Information Services Division (Scottish health statistics)
www.takelifeon.co.uk
Scotland's healthy living website
Disability links:
www.cafamily.org.uk
Contact a Family website - support for families with disabled children
www.ckglasgow.org.uk
Common Knowledge provides online learning, accessible information and social networking for people with learning difficulties.
www.enable.org.uk
Enable Scotland is the leading learning disability charity in Scotland
www.capability-scotland.org.uk
Capability Scotland work with disabled people of all ages and their families and carers throughout Scotland
www.fair-deal.org
Fair Deal provides support for adults with learning disabilities to live ordinary lives in their community.
www.cerebra.org.uk
Cerebra is a charity helping to improve the lives of children with brain related conditions through researching, educating and directly supporting children and their carers
www.update.org.uk
UPDATE - Scotland's National Disability Information Service
www.netbuddy.org.uk A great resource with over 1000 tips from people with first hand experience of learning disability, including a section on epilepsy and safety
Education links:
www.enquire.org.uk
Enquire is the Scottish advice service for additional support for learning
www.thetearoom.org.uk
The Tea Room – a friendly space for young people with epilepsy in Scotland
www.epilepsyclassroom.com
Created for parents and teachers to help provide advice, insight and tools that can help make handling epilepsy just another part of the school day.
www.epilepsy.cc
Centre for epilepsy and seizure education in British Columbia, Canada. Excellent videos and a lot of information about epilepsy.
Employment links:
www.momentumscotland.org
Momentum Scotland provides advice and support to disabled people towards mainstream employment
www.remploy.co.uk
Remploy is one of the UK's leading providers of employment services and employment to people with disabilities and complex barriers to work
www.careers-scotland.org.uk
Careers Scotland provides careers advice including specialist advice for people with a disability
www.skill.org.uk
Skill Scotland is the national charity promoting opportunities for young people and adults with any kind of impairment in post-16 education, training and employment
Advice and support links:
www.equalityhumanrights.com
Equality and Human Rights Commission, their services include a helpline for free advice on all aspects of discrimination
www.acas.org.uk
The Advisory, Conciliation and Arbitration Service provides full of up-to-date information and advice for employers and employees
www.cas.org.uk
Citizens Advice Scotland - information on how to find your nearest CAB office and more
www.direct.gov.uk
Government website for information on benefits, access to work scheme, disability advisers and many other subjects
www.govanlc.blogspot.com
Govan Law Centre - free legal resource
www.breathingspacescotland.co.uk
Breathing Space (helpline for people in distress)
www.samaritans.org
Samaritans (24 hour helpline for people in distress)
Other useful links:
Support Dogs in the UK provides information on assistance dogs, including information on seizure dogs
www.scvo.org.uk
Scottish Council for Voluntary Organisations website
www.bigheartedscotland.org
Big Hearted Scotland (Scottish Charities Working Together)
www.scottish.parliament.uk
Scottish Parliament website
www.scotland.gov.uk
Scottish Executive website
www.turn2us.org.uk
Turn2Us provides an online and helpline service for those in need of financial assistance
www.dvla.gov.uk
Driver and Vehicle Licensing Agency – includes information on medical rules for drivers
www.disabledpersons-railcard.co.uk
Information on how to get a Disabled Person's Railcard
www.transportscotland.gov.uk
Transport Scotland provides information on how to get concessionary travel
