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There are many more organisations and agencies who can provide advice, support and information on epilepsy and related issues. These include:

Quarriers are a charity who offer practical support and care for children, adults and families in Scotland. Their services include the Scottish Epilepsy Centre, Epilepsy Fieldwork Services and long-term residential services. For more information, visit their website or telephone 01505 612224 or 616000


The William Quarriers Scottish Epilepsy Centre provides specialist residential assessments, treatment and care for adults with severe and complex epilepsy. The centre is the only one of its kind in Scotland. People are assessed on an individual basis according to their specific needs. Tests include EEG and video telemetry. If you would like to find out more about this service contact Email:, Tel: 01505 616066, Web:


Quarriers' Epilepsy Fieldwork Service promotes the welfare and wellbeing of people with epilepsy by offering information and support throughout Scotland. The service works in partnership with families, healthcare professionals and the community to increase awareness and understanding of epilepsy. For more information on this service, please contact the service co-ordinator, Lynnette Oldman: Email:, Tel: 01224 566385

Here are further web links to epilepsy organisations who may be able to help:
Created for parents and teachers to help provide advice, insight and tools that can help make handling epilepsy just another part of the school day.
Centre for epilepsy and seizure education in British Columbia, Canada. Excellent videos and a lot of information about epilepsy.
Joint Epilepsy Council
Epilepsy Connections (cover Greater Glasgow & Clyde and Forth Valley Health Board areas)
NHS Scotland Managed Clinical Network for Epilepsy
Muir Maxwell Trust (Scottish paediatric epilepsy charity, support and free epilepsy alarms for children)
Epilepsy Action (UK-wide epilepsy charity)
Epilepsy Society
American epilepsy website, packed full of useful epilepsy information
International League against Epilepsy
International Bureau for Epilepsy
Epilepsy Ireland
Epilepsy Wales
Quarriers (charity providing a range of services in Scotland. They work for a wide range of client groups including people with epilepsy)
UK Pregnancy and Epilepsy Register - Freephone, information and research for pregnant women with epilepsy
Matthews Friends - useful information on Ketogenic Diet for children with epilepsy
The Daisy Garland is a registered national charity working exclusively for children with drug-resistant epilepsy.  They fund ketogenic dietitians who work in national health hospitals throughout the UK treating children with epilepsy. They fund Janette Buttle, a ketogenic dietitian, based at The Royal Hospital for Sick Children in Yorkhill, Glasgow, where  she is presently accepting referrals for children and adults.  For help and advice about the ketogenic diet and more information about the Daisy Garland charity please visit their website
Epilepsy Research UK
SUDEP Action: Information and support for anyone affected by SUDEP (Sudden Unexpected Death in Epilepsy)
Young Epilepsy (national charity for children and young people aged 5 to 25 with epilepsy and other neurological conditions)
The David Lewis Centre - (largest UK provider of a range of medical, educational, residential and assessment services for people with complex epilepsy and other neurological conditions, including learning disability and challenging behaviour) Information on Infantile Spasms / West Syndrome, written by a parent of a child with the condition.
Organisation for Anti-Convulsant Syndromes (support group for those affected by Fetal Anti-Convulsant Syndrome (FACS))

Other health conditions links:
Information about non-epileptic attacks and non-epileptic attack disorder
Information about non-epileptic attacks and non-epileptic attack disorder
SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions
Headway - supporting people with a brain injury and those who care for them
Leading UK charity providing information on brain tumours
Alzheimer Scotland - includes 24 hour freephone dementia helpline
This charity provides professional services and support to everyone whose lives have been affected by meningitis for as long as they need it and raising awareness of the disease.
Meningitis Research Foundation
Chest, Heart & Stroke Scotland (includes advice line)
National Autistic Society
Depression Alliance
Mental Health Foundation
Scottish Association for Mental Health – Scotland’s leading mental health charity
Migraine Action

General health links:
Interactive website about young people's experiences of different health issues, including epilepsy
Scotland Patients Association - Campaigning group for Scotland's patients
Scottish Voluntary Sector Health Network website
Scotland's Health on the Web (NHS Scotland website)
Scotland's health improvement agency website
NHS Scotland’s national health information service
Information Services Division (Scottish health statistics)
Scotland's healthy living website

Disability links:
Contact a Family website - support for families with disabled children
Common Knowledge provides online learning, accessible information and social networking for people with learning difficulties.
Enable Scotland is the leading learning disability charity in Scotland
Capability Scotland work with disabled people of all ages and their families and carers throughout Scotland
Fair Deal provides support for adults with learning disabilities to live ordinary lives in their community.
Cerebra is a charity helping to improve the lives of children with brain related conditions through researching, educating and directly supporting children and their carers
A charity working nationally that supports children and young people with any form of acquired brain injury, their families and the professionals that work with them. Providing information materials, in-house training and awareness sessions, online webinars on a number of topics for parents and professionals, and a national helpline 0303 303 2248; also family days out and emotional support.
Disability Information Scotland - Scotland's National Disability Information Service  Disability Advice Centre Glasgow (DAC) provides confidential and holistic information and support to people with a long-term health condition or disability, their families/carers and health professionals within the Greater Glasgow and Clyde area.

Education links:
Enquire is the Scottish advice service for additional support for learning
Created for parents and teachers to help provide advice, insight and tools that can help make handling epilepsy just another part of the school day.
Centre for epilepsy and seizure education in British Columbia, Canada. Excellent videos and a lot of information about epilepsy.

Employment links:
Momentum Scotland provides advice and support to disabled people towards mainstream employment
Remploy is one of the UK's leading providers of employment services and employment to people with disabilities and complex barriers to work
Careers Scotland provides careers advice including specialist advice for people with a disability
Skill Scotland is the national charity promoting opportunities for young people and adults with any kind of impairment in post-16 education, training and employment

Advice and support links:
Equality and Human Rights Commission, their services include a helpline for free advice on all aspects of discrimination
The Advisory, Conciliation and Arbitration Service provides full of up-to-date information and advice for employers and employees
Citizens Advice Scotland - information on how to find your nearest CAB office and more
Government website for information on benefits, access to work scheme, disability advisers and many other subjects
Govan Law Centre - free legal resource
Breathing Space (helpline for people in distress)
Samaritans (24 hour helpline for people in distress)

Other useful links:
Support Dogs in the UK provides information on assistance dogs, including information on seizure dogs
Scottish Council for Voluntary Organisations website
Big Hearted Scotland (Scottish Charities Working Together)
Scottish Parliament website
Scottish Executive website
Turn2Us provides an online and helpline service for those in need of financial assistance
Driver and Vehicle Licensing Agency – includes information on medical rules for drivers
Information on how to get a Disabled Person's Railcard
Transport Scotland provides information on how to get concessionary travel